The people we spoke to had tried many different types of talking therapies. These included regular appointments with counsellors, psychologists, or psychiatrists, as well as forms of psychotherapy such as Cognitive Behavioural Therapy (CBT), Dialectical Behaviour Therapy, and group therapy. People also talked about the benefits of meeting and talking to other people through support groups about their experiences of living with a diagnosis of schizophrenia, psychosis and/or bipolar disorder. You can read more about this here: Support in life decisions, and Mental Health Community Support Services and Peer Support.
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The benefits of talking therapies
When talking treatments didn’t work
Almost all the people we spoke to had experience of some form of talking therapy over their lifetime. Most people saw a psychologist to ‘understand the root cause’ of their diagnosis, to deal with unwanted behaviours at particular times in their lives, to learn coping skills to deal with distressing emotions, or to explore ways to live with unusual experiences such as hearing voices. Although psychiatrists and psychologists have different training, psychiatrists can be trained in psychotherapy and some mentioned how their psychiatrist did psychoanalytical therapy with them, for example ‘Freudian therapy’. Carlo’s psychiatrist ran group therapy sessions where those who attended spoke about ‘things like fear and courage’. Some people had seen psychotherapists before their diagnosis to help with feelings of stress, anxiety or depression.
People accessed talking therapies while they were in hospital, through mental health clinics, GP referrals, mental health community support services, or privately. Lisa mentioned that many people she knew were referred through their GP and received six free sessions with a psychologist, via the Medicare rebate. She thought this was inadequate for ‘people with long term mental illness’.
When
Tanai was in hospital they organised group therapies, where diagnoses were explained and people could speak openly. She felt she gained personal insight from these sessions.
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Are these therapies like counselling groups or something?
Group therapies and you know like everybody would sit together and they’d learn about what their diagnosis was. Like they’d tell us what borderline personality disorder was one day and we’d have a big question and answer about it. They’d tell us about like bipolar disorder, schizophrenia. Because we had all these kids on the ward. And everybody would be educated and we’d be allowed to ask certain questions and that kind of thing. You had individual therapy with your team, which was two nurses, the psychiatrist who was assigned to you, and the psychologist on the ward. And they did like individual counselling on whatever was necessary. Like they had like, “Why are you depressed? Why are you so angry?” That kind of thing.
Was it helpful?
It was to a certain extent because it was useful to be in a place where I didn’t have to, I didn’t feel like I had to contain myself. It was just like well I’m here now, I’m just going to do what I need to do and let them see for once. And they saw what I was… like what my behaviour, like everything uncensored kind of. And I did, I would sit there and I would just ramble on in therapy and with whatever I felt like I needed to talk about. And it did help. Like it got a lot of stuff and I ended up making a lot of sense for myself and I gained a lot of insight. But without the insight I don’t think I would have gotten anywhere.
For most people therapy sessions were face-to-face, however, Niall and Carlo spoke about using helplines such as Lifeline or beyondblue. David described how he had accessed phone support when his support worker was away. He said that this helped him to identify that he needed assistance with the ‘basics’, like eating properly, exercising and sleeping. This led to face-to-face counselling sessions.
The benefits of talking therapies
People described many benefits of speaking to a professional therapist. For David, it was about ‘understanding… feelings… motivations’, while others found it helped them deal with feelings of stress and anxiety or mood swings. Michelle, who was diagnosed with schizophrenia, described how she had seen a psychologist regularly. Although she didn’t discuss schizophrenia with her psychologist much, she found the sessions helpful with ‘coping with life generally’. Gurvinder had a ‘really good’ psychologist who gave him techniques such as mindfulness to deal with the voices in his head. Carlo said the group therapy sessions run by his psychiatrist also covered mindfulness, meditation and ‘spiritual topics’. He found these ‘really, really helpful’ because it was ‘beyond just the medication kind of dialogue’.
Opening up to a talking therapist for the first time was often an important step forward for some people.
Simon said he was referred to a psychologist after a ‘Freudian’ psychiatrist refused to work with him. It was the first time anyone had ‘ever listened’ to him.
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He didn’t talk to me, he just sat there and stared at me. He was very – apparently a Freudian. He was waiting for me to talk. But he did have a dollhouse in his room and I spent a lot of time playing with that. But when they wanted to send me back to him about a year or two later, he said “No, I can’t work with her”, because his style was not working for me. So he recommended a psychologist.
Now she was fantastic. Back then I was so withdrawn and self-hating, that I couldn’t even talk about myself. About anything to do with myself, I’d just shut down. Ask me to talk about a book or a house or trees, fine, but as soon as it was about me and my feelings, not happening. She got me to start by writing it on paper and drawing. And then once I had it on paper, then we would talk about what I had written, and that broke that barrier.
Great, was it talking therapy that kind of therapy…
Yeah, but she listened to me, which at that point I was about 16, nobody had ever listened to me. They told me what they thought I should do and everything, but they hadn’t actually listened to me.
Talking therapy opened new doors for some people. After the group sessions with his psychiatrist, Carlo described how he went on to see a counsellor and arranged family counselling with his parents, which helped him ‘address a lot of fears which probably stemmed from childhood’.
For
Evan, having counselling gave him a sense of motivation and enabled him to do things he otherwise wouldn’t have done.
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But this counselling gave me a sense of motivation, to be able to go on with life and to be able to get interactive into the community. This form of therapy not only made me interactive in the community but made me become a soccer coach. Yeah and then advance to a soccer referee for [soccer organisation].Yeah, with a mental illness, mind you. But I managed to do it and I did it successfully for a number of years. And now I’m at the local church, I’m on the committee and I help run the church as well. So I’ve had leadership roles in the community but I wouldn’t have had those leadership roles if it wasn’t for that, you know that therapeutic counselling that I got.
Some people felt very strongly that they needed talking therapy at particular points in their lives. Michelle said that when she had some ‘space’ from her illness and had ‘healed a bit’, it was the ‘right time’ to ‘look deeper’ into what happened and why. A few people told us that it was difficult when talking therapies were not available when they felt they were needed. Jenny described how she wanted CBT to help her control a disturbing voice that she was hearing. When her psychiatrist said ‘she’d had schizophrenia for too long and it wouldn’t help’, she said she felt so ‘down in the dumps’ that she attempted suicide.
A few others, however, didn’t think there would be any real benefits from talking therapy, or only realised the benefits later on. Tanai had just started DBT when we spoke to her. She was not sure if it would help but said she would ‘give it a go’.
It was only after she left hospital that
Lisa realised she had benefited from the group therapies she had there.
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Did he practice CBT or DBT with you?
CBT with me and I did DBT in hospital.
Okay. They were helpful?
Yeah [laughs]. In retrospect perhaps. Whilst I was doing DBT I was kind of like, ‘What crap is this?’ And again, I don’t think that’s explained very well.
Like, I felt a bit like group therapy in hospital was a bit like school, like you were just being told what to do, not like let’s actively find ways to… But again, that’s some hospitals are going to practice different you know, some hospitals do ACT (Acceptance and Commitment Therapy), it’s going to be different everywhere. But, I felt a bit like, “Oh you’re going to sit here and you’re going to have to do it, like you have to do this”. And I was not receptive to it when I did it but now I’m like, ‘oh yeah, I’ve learnt some elements that have carried on.’
When talking treatments didn’t work
Quite a few people talked about negative experiences with talking therapies or how they could not see their benefits. Some who had experienced counselling and psychotherapy found it repetitive and too open-ended, or felt it didn’t get to the point. Brendan saw a psychologist for 18 months and by the end felt there was ‘only so much that you can talk about your relationship and your mum and your dad’. Although the therapist had said if he stopped he might miss out on finding out something important, he didn’t think there was ‘a breakthrough to find’.
Taylor experienced counselling with two psychologists but felt this was not helpful at all. One gave her breathing techniques and the other ‘tried’ positive thinking techniques but she needed practical support.
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Well I was referred to one, I was referred to a psychiatrist, psychologist, but I didn’t know whether I needed to see a psychiatrist or a psychologist at the time but the doctor said, Well try a psychologist”. So I’ve seen two psychologists. They haven’t helped me at all, no.
Could you talk about how those interactions went and what you found?
The first psychologist, she was really good. She was very friendly, very understanding but with my symptoms I’m having trouble going back into shopping centres and things like that. So I’ve got, I think it’s a bit of social anxiety as well. So she didn’t really give me or help me in any way kind of get back into those type of things. She just gave me like methods but not actually going and doing it physically with me. So I think when people have symptoms like that I think you kind of need someone to hold your hand, to kind of go with you and be there with you. Having your partner do it, it’s good but I think it, they’re too close to the situation so you kind of need someone that’s trained in that field to help you do it.
When you said she gave you methods, what did you mean by that?
Well like how to concentrate on your breathing and just stuff like that and we tried cognitive therapy and just different things. The second psychologist tried stuff like that, positive thinking and all that but it hasn’t worked. It might work for some people but it didn’t work for me because I’m finding the support worker a much better option for me.
For some people it was difficult to open up to or trust a therapist. Brendan mentioned the difficulty of finding a ‘good’ therapist: ‘you don’t know who’s good and who’s not’. David was ‘terrified’ of ‘talking about [his] innermost feelings’. He said he would have to get to know someone and trust them ‘to let down [his] guard’. Although Vanessa’s psychologist was helping her with sleep and other problems, she said she was reluctant to disclose ‘things that have happened in my life that I know are responsible for why I feel so bad’ because she felt there was ‘no confidentiality’ in the regional city in which she lived.
Quite a few people spoke about not getting on with some of the psychologists they had seen. Carlo and Tanai both described having an instant dislike to particular therapists they had visited. Carlo said of one therapist: ‘he had a smirk on his face and made me feel uncomfortable’. The first psychotherapist Michelle saw ‘rubbed [her] up the wrong way’.
Before he was diagnosed with depression
Brendan saw a psychologist for other issues. He said he didn’t speak much about ‘what was going on’ for him.
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He asked me if I wanted to speak with somebody, and I guess, because I wanted to try and get help, I said, “Sure”. You know, and he organised for me to see a psychologist, who I did see for maybe four or five times. And I guess, I don’t think we had a very good relationship because she was helping me with relaxation but I guess that was… And I think I started doing a mood diary, or something along those lines. But I guess I didn’t really feel that we spoke a lot about what was going on for me. So I didn’t get a lot of satisfaction there.
And then I was still working and I guess that, you know, going backwards, that’s where I ended up deciding I can’t, I’m going to take my own life. So I’d seen somebody but there was also this underlying thing that maybe I had [a] diagnosis of depression, maybe there was something around that, but there was no diagnosis that was given at that stage.
Lisa was 14 when she saw a psychologist for help with bulimia. She said the psychotherapist asked a ‘bizarre’ question and felt she wasn’t the ‘right person to speak to’ at the time.
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I suppose it really only come to the fore maybe as I entered early adolescence, I suppose. And that’s when, I mean the first thing I made myself throw up was pasta and that’s what I sort of recall quite vividly and I don’t know how that started. But from that point on I suppose making myself sick became a bit of a reset button if you will. And so I continued to do that probably up until my early twenties or so. I started seeing a psychologist maybe when I was about 14 and I think I was given perhaps maybe six sessions or something and it was actually done through my mother’s work at the time and she was offered, I think it was part of some sort of employee package where you could get assistance for family members, whether that be medical help or psychologically help or counselling.
So I did that when I was about 14 and met with this woman in the city and I just remember I built no rapport with her whatsoever. So there’s me, probably 13 or 14 years old, and I remember she asked me like how suicidal I felt on a scale of one to 10. And I just found it such a bizarre question because prior to that I guess I did have suicidal ideation but no real intent or plans towards it. I found it a bizarre question to have to rate my suicidality on a scale. It was very like concrete and so I didn’t really understand that. And, I also felt that she probably wasn’t the right person to be speaking to, I don’t think.
I stopped seeing her. I can’t actually remember how long it was until I was eventually referred to a psychiatrist through my GP.
A few people felt talking to a therapist could make things worse for them.
Allen said talking about mental health ‘time and time again’ could prevent you from moving forward. He felt it was important to talk about things other than mental health sometimes.
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It doesn’t necessarily challenge you to change that. In fact the experience of repeating your problems to various counsellors, be they social workers, psychologists, psychiatrists, it can sometimes make you wonder whether you’d be better talking about something not mental health related. Like talking about the cricket or the weather or the freezing cold or consumer gizmo that you’re interested in. I think sometimes mental health, even in therapy, gets too much of a hearing. I wonder whether for long term consumers of mental health services that they actually might be better just getting their minds off it for a bit.
That’s interesting.
And even employing those strategies, as ridiculous as they may sound, as a part of the formal therapy session even if it’s paid for by Medicare. Like learning how much talk about mental health and mental illness is actually effective. Because in every mental health consumer’s life there’s a whole lot of life that is not mental illness. But it’s often living that life that can be the more enjoyable than talking about the mental illness. So the mental health counselling can be helpful but if you’re repeating the same old stories time and time again I actually think that can be putting lead weights on your ankles unnecessarily and preventing you from really moving forward.
A couple of people gave examples of when talking therapies had themselves created problems. Brian experienced Eye Movement Desensitisation and Reprocessing (EMDR) – used for treating trauma – when he was seeing a therapist about his sexuality. During the session he recalled being abused by his uncle and possibly by his father; he later realised his father did not abuse him. He thinks at that time he ‘just took on too much information and broke down’ after that. A few years later he said he started getting ‘signs of schizophrenia’.
Jenny said that she saw a social worker because she was hearing voices. The therapy worked, but the social worker’s voice became a new dominant voice that ‘tormented’ her.
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I read in a book where a medical practitioner could become one of your voices – one of your voices in your head. And I found out about this service and went to a service in [city] and I met a social worker and she said she could support me with that idea. Yeah, anyway, she became a voice in my head. So what happened was her name was [social worker], she was a social worker. I saw her three or four times and after that I didn’t really see her.
She was just a voice in my head and what happened was she encouraged me to go to the movie, Jumanji. Do you remember Jumanji? And what happens in Juma – all these… I can’t remember the full story, but all the world is sucked down this game, into a game board. Everything gets sucked in and when everything got sucked in, my voices went and [social worker] became my dominant voice and that’s what happened, you know. There’s no logic in that. Perhaps there is some logic in that. I don’t know. You know, perhaps there’s more reality to it than we realise. But, anyway that’s what happened and she became my dominant voice.
And then the trauma really started. Because really for me, like, hearing voices, whether it’s a diagnosis of schizophrenia, your symptoms are different for everybody. Like, I know that, because now that I’m pretty recovered, I work with people who have got mental health issues. And people who hear voices hear lots of different, so many different voices, but a lot of it is initiated by a trauma in childhood, and a lot of it relates to that. Anyway, [social worker] tormented me, and the principle behind it was I was learning to communicate properly.