Many of the people we spoke to described having co-morbid physical conditions that were either related or unrelated to their mental health problems. These included conditions that had a relatively minor day-to-day impact such as diabetes or impaired kidney function, but required regular monitoring and treatment to avoid significant complications. Others spoke about more severe conditions such as chronic pain, sciatica and fibromyalgia, which could have a significant impact on people’s mental health.
People talked about the relationship between their physical and mental health – when mental health impacted on physical health, and vice versa. They also discussed the impact of their physical symptoms on daily life, side-effects of medications, the impact of life stage on physical health, and the links between good physical health and mental wellbeing.
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Relationship between physical and mental health
Symptoms of co-morbid physical health conditions – impact on daily life
Physical health and recovery from mental health problems
Accessing care for physical health problems
Relationship between physical and mental health
For many people, the relationship between physical and mental health was complex. Some people described how mental health problems had manifested as or caused physical problems. Carlo went to hospital after experiencing breathing difficulties, a racing heart, and a sense of unease. After some tests his treating doctor told Carlo his heart was ‘amazing’ and did not undertake further investigations, leading Carlo to delay seeking a second opinion. In Sarah’s case, a mental health problem contributed to physical health issues.
When
Sarah left a Buddhist monastery where she was on retreat she was in ‘distress’. She had stopped eating, was dehydrated and had developed pneumonia.
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They did start to worry about me because of my distress and then luckily I was a part of that Buddhist community. So they ended up emailing my parents and, as well as my talking to my parents and yeah.
And then they decided they needed to come and get you?
Yeah.
So did you start any treatment?
Well actually, the funny thing is that I got pneumonia, so that’s what I got treated for and I was like, that’s the funny thing as well, I wonder what also triggered it. Because I was very dehydrated and very underweight, because I wasn’t eating. And then I’d got pneumonia. But then I was taking medication for that and then I came back here and I started getting treated.
It wasn’t – I can’t remember how long it was. But it was a few weeks of being at home and then a couple of weeks of being in a private hospital and then being at [public hospital] and then I got treated pretty quickly I think.
Conversely, many people reported that their physical health issues affected their mental wellbeing. Cindy described feeling ‘down and depressed’ after experiencing years of a still undiagnosed ‘itchy, burning’ and ‘chronic’ skin condition. Others felt that their mental health diagnosis was brought on by a physical condition. Michelle said that when her back pain was ‘undermanaged’ by her GP it had the effect of ‘eating away at’ her mind, and had played a ‘big part of bringing on what triggered’ her symptoms of schizophrenia.
For Helen and Taylor, menopause impacted on their physical and mental health. Helen found that she gained weight after taking an antipsychotic medication, which had not occurred prior to menopause. Her GP undertook tests to determine why. After her thyroid test results came back normal, Helen thought, ‘Maybe it’s just part of my life. What do they call it? The post-menopause or whatever, ageing’. Taylor also associated her heightened anxiety and depression to being in a peri-menopausal life stage.
After undergoing major surgery in his early 20s,
David found the resultant pain difficult to manage. This had a ‘real effect’ on his mental health.
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The problems remained off and on for many years. It was only after I had a major physical procedure, a surgery and was left in constant pain afterwards that I sought help with coping because my GP had identified that chronic pain obviously has an impact on mental health and mental health came back on the experience of pain.
I wasn’t coping. The pain just didn’t stop. The pain of post-surgery just stayed with me and I wasn’t coping with being in pain. I was on all sorts of pain killers to try and help with coping with the pain but it was having a real effect on my mental health. I just, everything became more demanding than it had been in the past. It was having a larger impact. So the same lifestyle I just wasn’t coping with.
I was heavily involved in the community theatre at the time. I was running a community theatre company. I was working a full time job, had a long term relationship and things started to break down. I just started not being able to cope. I started getting into trouble at work because I was not keeping up with the demands. I had to quit the theatre management side of it because I wasn’t able to juggle all the demands and my relationship broke down. That sort of two year period post-surgery.
Symptoms of co-morbid physical health conditions – impact on daily life
Co-morbid physical health issues limited several people’s ability to work. Simon said he was forced to ‘retire’ at the age of 26 due to fibromyalgia, which he described as ‘an ache all over, you feel like even your eyelashes are aching’. ‘Sky high’ hypertension in conjunction with depression put a halt to Vanessa’s work as a teacher.
The pain
Michelle experienced following a back injury prevented her from working, which placed ‘pressure’ on her partner to support her and her daughter.
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It was probably about two years that I was pain free and then, and I was yeah, really looking after my back and everything and had lost a lot of weight. I don’t exactly know what triggered it again. I think I was just a bit, yeah, I had sort of joined the gym and was using all the different machines and things like that, and probably being a bit overzealous and just over a few days it kind of just came back again.
I was basically trying to manage this horrible, like it, it felt like a knife was in my lower back.
Oh god…
Yeah, and I was, you know, trying to manage it with Panadol and, Ibuprofen and stuff like that, but it wasn’t really good enough. So I was trying to do that for about, I think about nine months or something but I was pretty, yeah, unable to function very well. Like I could only be up and about for a certain amount of time before I had to lie down for hours and things like this. So I was only able to manage very basic tasks for the day and stuff.
And not really realising that there was something that I could be taking that would help with it. But anyway, so during this time of being in a lot of pain, my partner, he had his own problems. He was very stressed and under a lot of pressure you know to provide for me and my daughter and because I didn’t work and was quite dependent, it made things worse when I wasn’t able to cope myself. It just put a lot more pressure on him.
A few people said medications to treat physical health issues negatively impacted on their lifestyle or had unpleasant side effects. Some medications that Cindy was prescribed to treat a skin condition caused drowsiness and sensitivity to light. Michelle called a ‘strong’ painkiller that reduced her back pain a ‘lifesaver’, but it caused chronic constipation.
Unwanted side effects from psychiatric medications such as weight gain and lethargy were common (see also Medication: Effectiveness and Side Effects). Other side-effects mentioned were drooling, visual disturbances, and a dry throat. Some people were able to accept these and developed simple management strategies. However, some medication side effects led to complex, difficult to treat problems.
Tanai’s medication-induced hunger spiralled into bulimia, which left her with a number of severe physical health issues.
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I’d wake up and I’d be hungry like I hadn’t eaten in a week. Like I felt like I was hollow from the bottom of my ribcage to like the bowl of my hips. I felt like I’d been carved out. I was so hungry. And so I’d find myself eating and then that developed into bulimia which kind of got hard-core. I was pretty bad with that. At my worst I was bingeing and purging 12 times a day. Started to bring up coffee ground blood which is where it’s like drying and oxidising in your stomach.
Like so I had a minor internal bleed. I have scars on the back of my throat and delayed gastric emptying. There’s a few, like quite a few things that have happened to that. I have an arrhythmia. I have orthostatic hypotension where I stand up and I go blind. Because it, like it takes that long for my blood to catch up. To get back to my eyes kind of thing. Like yeah, I messed myself up pretty badly. I’ve got one molar that might, I might be able to keep. The rest have to be completely fixed or just taken out. I went in and I got an assessment on my dental work that I needed and I need three root canals, three removals at least, a couple of caps, lots of cleaning, lots of stuff like – it messed me up pretty bad. But yeah that actually led in itself to a fear of food. Like I got to one point where I’d thrown up and it’s just – there’s blood.
I was passing blood in bowel movements. Like and it was just – I got scared. I was just like clearly I cannot be trusted around food. And I ended up restricting really badly. And in a year I lost 43 per cent of my body weight. This time last year I weighed I think 24 kilos more. At my heaviest I was 88, at my lightest I’m roughly like 52. But yeah that was crazy, that was pretty bad. And that actually left me rather sick and I’m still not doing that great with it. Like I’m getting better but it’s still very difficult in terms of maintaining a normal amount of calories.
Vanessa talked about some of the physical side-effects of psychiatric medications she has tried.
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And the DOTHEP (Dothiepin). I take a 150 milligrams at night. They do a lot of trials, the psychiatrists here with drugs and they put me on Risperidone but I couldn’t take it. It made me dribble and drool and have other side effects like the footpath coming up in front of you.
One time I got up out of bed, I was on 10 milligram and it was like The Golden Child. I just couldn’t tell where the footpath was, where the hallway to go to the toilet, was. And some little voice in the back of my head said, “This is your hall, reach out and you’ll feel a wall on the other side” and so I just felt my way to the loo. And another time I was in the city and I had to see the disability support officer. This is before I got my pension and a man was walking past so I asked him if could I hold his hand and walk down to the street. And he said, “What’s happening to you?” and I told him that it was all rising up and he said, “Well, I’m next to you and it’s not, so you can’t believe what you’re seeing. You have to go on other judgment”. So I did that, but then I refused to take it and then they said I had to, had to take all the medication.
Physical health and recovery from mental health problems
Many people discussed the importance of maintaining good physical health (see also Negotiating daily life and Self-help strategies). Improving one’s physical health, whether through exercise or diet, was viewed as being an important part of personal recovery. People spoke about exercise in relation to increasing wellbeing in general, or more specifically, to lose weight. To improve his overall health and wellbeing, and to promote recovery from his mental health condition, Evan said he had enrolled in a weight management program at a clinic. Being unable to exercise was frustrating for some people.
Carlo had a strong focus on staying ‘well and healthy’ through exercise, yoga and meditation. Unable to exercise after he underwent surgery, he felt he had lost an important form of ‘stress release’.
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I then had ankle reconstruction surgery because I hadn’t been exercising for probably about a year and a half before, because this now, in the start of 2008 and I think for me prior to that I was playing a game of basketball a week and that was kind of like my outlet, my stress release. And I had injured my ankle a year a half before that and I was getting help with that. I hadn’t kind of recovered properly and so I wasn’t exercising.
So in hindsight, another kind of risk factor for me in that I just wasn’t able to do what I was doing, using the same intensity and therefore I had to, yeah, my body kind of didn’t like that because there was no other release for my body to express itself in, in a physical form.
Accessing care for physical health problems
Getting the necessary help from doctors to manage their physical health was challenging for a few people, who described having to insist on a prescription, or a referral or care plan from a GP to see a specialist. A few people said being able to access what they felt was needed reduced the negative impact of their physical health condition on their mental health. Being able to access the pain medication that would stop Michelle being bedbound proved difficult for her, but she persisted and ultimately succeeded.
Cindy encountered difficulty in accessing help for a physical health problem due to doctors’ attitudes towards her mental health condition.

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So they just were refusing to engage with the lived reality of your physical symptoms?
Yeah, yeah. And they tried me on all sorts of medicines, all different doctors, like cortisone which is very drastic because it wrecks your bones. I was on some medication I wasn’t allowed to go in the sun with and another one I wasn’t allowed to drink alcohol; ones that caused drowsiness. I don’t know what they’re called because tablets and that just mix me up pretty shocking. And now I’ve ended up on tablets for the schizophrenia and all that instead.
So it’s a very bizarre for me because I don’t believe the symptoms ever come to me in schizophrenia. I don’t know where that came from and then the delusional thing was because when I was getting help for my hands the doctor – the psych didn’t believe me either. So he just said ‘You’re delusional” and then it got put on my record forever. So it’s very hard to get help when you’ve got that on your record as well yeah.
You’re labelled that and then the doctors don’t believe you when you’re really trying to tell the truth and they should look at your record and see you don’t come in often for anything so you’re actually telling the truth. And because I went in so often to so many doctors for these you’d think that someone would have believed me. Only the local doctor, a specialist. He’s the only one that sort of helped me as much as he could but he gave up in the end. I cried when that happened.
And how did he try to help you?
He tried to give me UV treatment which is very harsh as well and that helped for a little while. Lots of things have helped for a little while but I’ve even been desperate enough to try Deep Heat and that on open wounds – you can imagine. I tried to kill it because I think it’s a parasite.
And you still experience pain from it?
Yeah, I’m sort of used to this pain but it comes and goes as well, so you can never really get used to it but it’s not as bad as the first say ten years. So I don’t know what’s going on with it but it just keeps flaring up and I cover it with bandages and stuff so that it sort of heals it a bit better and keeps it kind of moister. It needs to be because it doesn’t get pus and you’ve got to get it out or else it keeps growing or it turns into a hard shell ready to rear up maybe one day. I don’t know. Scary.