On the whole, people spoke about positive experiences with mental health practitioners, particularly in the private sector. However, a few described negative experiences. Many people had suggestions about how mental health professionals could improve their services, for example through continuity of care, a person-centred approach, and the use of clear language (see Advice to others: Health, mental health and allied health professionals).
Although most people had experienced several psychiatrists looking after them at different times in their lives, many had also stayed with a particular psychiatrist for years (five years or longer) and highly valued their input. Others were seeing a mental health professional on a regular basis, although the satisfaction with this experience varied. Brendan explained how he sees a psychiatrist ‘who is really busy’ once every six to eight weeks because ‘that’s how often you can get an appointment’.
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The relationship
Treatment decisions
Evan said his psychiatrist has many good qualities, and ‘doesn’t create boundaries’.
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What qualities in him that could – that you would see as being key to what makes him a good practitioner?
Well, the quality is he treats me like a human being, he treats me like a human being. He treats me like a friend. Over the years when trust is built he doesn’t sort of create boundaries you know. And we give gifts to each other you know, for, when I know Christmas is there, Easter time. And he respects my spiritual belief as well, which is good, he respects that. And when trust is built he opens up with some of his judgements as well. You know, they say that a practitioner should be non-judgemental but I say for him to be a good practitioner he’s got to be human too. So he’s got to have judges, judging in there too. He’s got to have a bit of non-judgemental comments, but I believe that that should be put forward in the right time. And not only that, but also when trust is built, not in initial basis, Yeah.
Could you think of an example where he might have made a judgement?
Yeah, I can give you an example. For example, I’m talking about high school times, how I enjoyed high school times and he says this to me, yeah he went to [university] for example and I used to do community education around the schools. I used to go to school and talk about mental health and mental illness. And I told him about the kids there.
Anyway we’re talking about [high school] and he says to me, “Evan did you see my name up on the board”? [laughs] I said, “What board”? He said, “The Honours Board”. “Yeah”. “I was dux of the year there.” So that’s just you know, he’s bringing on his personal details to me and that’s cutting the boundaries a bit and that’s like being a friend with me. I think that shows good quality in a good practitioner. To be able to do that at the right time you know and to be able to show that he’s not just a doctor, to be a friend to the person too, yeah.
While people’s experiences of mental health practitioners were often positive, they could vary depending on a number of things, such as the sorts of questions asked, how the practitioner related to them, and whether their ‘input’ was taken into account. Being able to establish a good relationship with mental health practitioners was what stood out most when people talked about positive experiences. In contrast, negative experiences were associated with feeling as though they had not been treated as an equal.
Although
Anna currently has a ‘fantastic’ psychiatrist, in the past she found psychiatrists to be ‘egocentric’.
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I mean she took me on by fluke. You know, I just think she’s the best thing. Like I’ve had so many psychiatrists and they’ve all been pretty much the same in terms of their approach and attitude.
How would you characterise the approach and attitude of all the psychiatrists you’ve had?
They’re just an arrogant breed. I don’t want to say this because a lot of people won’t be happy with me, but they tend to be very egocentric, very arrogant. And, you know, it’s just like, “We know and you know nothing. So you’re the person with the problem and we know how to fix it”, and that’s it, end of story. No arguments and no further discussion required.
So I really got to the point where I absolutely hated the psychiatric profession. But now having met this one person I think, ‘Oh well, maybe they’re not all that bad’.
People met mental health practitioners in hospital (see Hospitalisation: Being admitted and leaving and Hospitalisation: Daily life and treatment), through mental health clinics, or through private consultations. Quite a few people spoke about the benefits of being able to choose their psychiatrist through the private medical system. Chris changed psychiatrists after experiencing a bad reaction to a medication. He said having a new psychiatrist ‘opened [his] eyes’ to the fact he could access other doctors, which ‘felt great’. However, a few people spoke about ‘exorbitant fees’ that inhibited their access to psychiatrists. Jenny described how she had to stop seeing her psychiatrist who was helping her ‘a lot’ because she was doing unpaid voluntary work and couldn’t afford the fees. Quite a few people mentioned only being able to see someone who ‘bulk-billed‘. Bulk-billing providers do not charge patients more than the amount they bill Medicare, Australia’s publicly funded universal health care scheme.
The relationship
Having a good relationship with mental health practitioners was seen as important for everyone we spoke to (see also Experiences with GPs). For several people, having a good relationship with their psychiatrist meant being able to trust them. Allen felt that he had ‘a trust relationship’ with his psychiatrist. Others felt that it was important to have someone they were able to open up to. Paddy said his psychiatrist was a ‘good shrink’, ‘professional’, asked ‘the right questions’ (such as “Are you sleeping, are you taking medication?”), and someone with whom he felt he could ‘really have a conversation’. Michelle described the psychiatrist who diagnosed her as ‘very insightful’ and said he asked ‘very probing questions’. For many people, feeling listened to was critical. Anna said her psychiatrist was ‘eager’ for her input, which really gave her her ‘dignity back’.
Helen described a very frank conversation with her psychiatrist who admitted he could not ‘completely’ understand what depression was, but said he would ‘try’.
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And then I continued as an outpatient and the second visit I was being questioned by the understudy of the head of psychiatry. And he spent ages asking me all these questions and that. And at the end of it all he goes, “Oh, that’s fine, Helen”. He goes, “That’s it”. He goes, “Do you have any…” I said, “No”. I said, “Can I ask you a question, please”? And he goes, “Yes, of course”. I said, “Have you ever suffered with depression”? And he goes, “No, I haven’t”.
And I just said, “Well, you’ve got no idea. Well, you will never understand what I’m going through, because you have not been in my shoes”. He goes, “Well, you’re the first patient ever to ask me that question”. And he goes, “And it’s very true what you say”. He said, “No, I will not understand completely”. He said, “But I will try, you know”.
When
Ann realised she needed help with the voices she was hearing, she wrote a letter to her psychiatrist because she didn’t want to answer any questions.
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There was a trigger for it but I can’t really remember exactly what happened. Yes, I can. I was in the car and there was a person sitting next to me, like an invisible person sitting next to me and one sitting behind them. And I was in my own little world driving along having a chat with the two of them and I kept looking in my rear vision mirror at the person sitting behind me. And I almost ran up the back of someone going, going at like 60 and slammed the brakes on – didn’t smash. But that made me think, ‘Okay, I need to actually probably address this because it can be dangerous’.
So I went and my next, like I was seeing my psychiatrist the next week or something. I didn’t have to make another appointment, because I see him every couple of weeks or every month. And I didn’t know how to talk to him about it so I wrote him a letter and I wrote it all down and just said, “I’ve got something to talk to you about”, and handed him the letter. And he was really you know, open and receptive and inquisitive. And I didn’t want to answer too many questions. I was a bit freaked out by the fact that I’d actually finally told someone after so long.
So how long had you been seeing this psychiatrist before you actually… And established really good rapport…
Probably five years. A long time… Yeah, I still couldn’t say it because I was still sort of ashamed. And he was really good.
Some people described how a mental health professional had gone out of their way to help them. When Helen noticed she was ‘going down’ her psychiatrist offered to put a note on her file to contact her or her family to see how she was going in one month’s time. This offer of follow-up was very important for Helen because, as she explained, ‘if I don’t come for a long time, that means that I’m not on my meds’.
Paddy’s psychiatrist came to his school to talk to the teachers so that Paddy would pass Year 11.
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Psychiatrist rather. Yeah, he was really good. Like years later, I think he came into the school and he never got paid for this, because he lived out our way. We grew up in [inner suburb]. So that was nice of him, to do that. [laughs] He…
So he came in and…
Into the school and he said, talked to teachers, had a special meeting and said, “Just rubber stamp him. You know, just, you know get him to do a basic of work”. Year 11 VCE that’s pretty nice, you know. I didn’t muck around a lot but, yeah, there was the odd, shall we say… And some teachers were more open to it. But joining desks together and me dancing on the tables but at times, but you know because they knew I wouldn’t be able to do Year 12.
Even where mental health professionals didn’t agree with them, a few people found that a relationship of trust meant they were willing to accept the professional’s decision.
Although
Jenny said she didn’t like it when her psychiatrist was ‘dictating’ to her, she trusted her expertise.
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So do you trust your psychiatrist?
Oh, yeah, she’s good. Yeah, yeah. I trust her.
And so you set the, because it sounds like in that context you’re setting the agenda for the therapeutic relationship in…
Yeah, but she does tell me, like she said to me, “Well, Jenny, if we’re going to do this, you must stay on the medication” and because, see our appointment yesterday was actually to, it was to go off the medication. I’d planned it for two years. But I felt one of my, I’ve been doing two part time jobs and one of the jobs is finishing. So, I’ve got to look for another job.
So I’ve got that bit of stress there and she said, “Well, you must, if we’re going to do this, you must stay on it”. So she’s dictating that, which I don’t like. I like to say myself what I’m, you know. I like to be in control. But I’ve got to meet her half-way. So yeah, that’s fair.
But why?
Well, oh she’s the professional and so I’m going to see her to get her advice and support. So, you know, I see that as a fair thing now. So, I’m not the expert in the field, you know. That’s, I’m going to her for her expertise.
In contrast, some people recalled seeing mental health professionals whom they felt unable to speak to. Simon and Jenny talked about their experience with psychiatrists who had used ‘Freudian therapy’ in their sessions. Simon said his psychiatrist ‘just sat there and stared at me … waiting for me to talk’. Jenny said, ‘the whole thing seemed a bit silly to me’ (see also Talking therapies). Bernadette said her psychiatrist was ‘hopeless’ and breached her confidentiality by speaking to her family without legal permission to do so.
Alice and Charlie spoke about their awareness of the power imbalance between themselves and the medical professionals who treated them. As Charlie said, ‘they have the power, not me’. Susana said that talking to mental health professionals was ‘kind of intimidating sometimes’. David found the ‘high-handed’ approach of his psychiatrist ‘threatening’ and felt he should have been involved and given some ‘choice’: ‘it’s my body, I want to feel in control of my body’.
Despite feeling ‘more in tune’ with herself,
Alice found it difficult to speak to her doctor.
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And that’s how I’ve always felt with psychiatrists, is that I’m always debating them. I’ve always felt like I’m more in a debate about legalities and what they academically think. Rather than being seen on an individual level from a coaching perspective, there’s always – even with the one that I stuck to for a while – there was this level of superiority as to where they sit in the system, you know. Maybe that’s something that I value to an extent. Is that we’re all human beings regardless of what experience we’ve got, what education we’ve got, and we can all learn from one another. You know, some need to lead and others be influential and all that sort of stuff. I get that. But yeah, I guess I never felt like I wasn’t in tune with myself enough to make an informed decision for myself. And sort of always felt like that was being taken away from me, so why do I even bother entering into, expending the energy to enter into a debate that I’m not going to win.
Treatment decisions
A few people we spoke to felt they were able to convey their ideas about treatment decisions to their mental health practitioner. Ann described a good relationship with her psychiatrist. She felt she would be able to ‘advocate strongly for’ herself if she wanted to stop her medication when she decides to have children. Lisa was able to talk to her doctors about stopping her medication because she felt it wasn’t helping and was worried that the side effects of weight gain might aggravate her eating disorder. She said her psychiatrist was ‘supportive of that decision’ (see also Support in treatment decisions). Others took the decision to alter their medication without their doctor’s consent and told us that they found their psychiatrist was supportive when they told them.
Allen said he doesn’t always discuss with his doctor in advance when he changes his medication, but his doctor supports him when he does.
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I mean I could handle my mental health in myself. I was worried about appearing abnormal to others. So I was quite, and still am, quite conscious about that. So I said to my doctor, he was away at the time, but he referred me to another doctor who he’s friends with.
And I described the symptoms and he said, “Look just get back on it. You know, just get back on it straightaway”. But I got back on it and all went back to normal. But on other occasions it’s been like – I’ve never quite discussed with my doctor, like, do I have the permission to take one more tablet of lithium if I’m feeling unwell, instead of one in the morning, take two, or – but I do and he doesn’t mind.
I can even quit medications sometimes. I can say, well I mean, like for example, I don’t know, about a year ago – I don’t see the doctor that often. Once every six or eight weeks. And I, because it had been over the Christmas break which is about three months or so. Three months without seeing my doctor. I said, “Look, excuse me Doctor X but I’ve actually dropped off my antidepressant”. And he said, “Oh well that’s okay”. Like he trusts me. There’s a trust relationship. He knows I’m not going to do anything stupid. And I know that he’s going to act in an informed manner. I sort of said, “I don’t want to tell you but I’ve actually taken myself off this medication”. But he didn’t mind. I took myself off it gradually.
In contrast, a few people described having negative experiences in relation to discussing treatment decisions with their mental health practitioners. Some described this as a struggle between themselves and the mental health professionals caring for them. Several people felt that if you weren’t compliant with medication or treatment decisions, mental health professionals would withdraw care. Anna said ‘There is no support. There is just judgement’ (see Community Treatment Orders, and Medication – Choice and non-compliance).
For others, the decisions made and care provided weren’t quite enough or were felt to be wrong. Simon, who is transgender, saw a social worker at a clinic when he had postnatal depression. Simon said that the social worker ‘flatly refused’ to let him see a doctor to get antidepressants.
Anna said she’d had many bad experiences with psychiatrists. She felt that psychiatrists ‘often misdiagnose’ and aren’t ready to change the treatment when it ‘doesn’t work’.
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But yes, borderline personality disorder seems to be a bit of a flavour of the month kind of. And yeah, now I’ve been diagnosed, apparently there is an overlap between that and bipolar, especially rapid cycling. And it’s often misdiagnosed. So again, it would be nice if people would just take the time, because obviously they have different treatments. And people, doctors should realise that if they’ve diagnosed something and the treatment doesn’t work, then obviously they’re barking up the wrong tree. But I think they get so caught up with it.
And again, and I’ve said this, I’m sorry, I’m really down on the psychiatric profession. Because I think, hey, they do 12 years of schooling and yet they seem to diagnose everyone with the same thing, give them the same medications. Whether or not that’s just because they get kick-backs from the pharmaceutical companies. I’m becoming a bit cynical about this whole thing. I think it’s really at the end of the day a pretty cushy job because you don’t have to work hard, you just diagnose everyone with the same thing.
And you know that’s been my experience in both the public and the private sectors. Because patients do talk amongst themselves and we do compare notes. And yeah it’s interesting.
Alice described mental health practitioners as ‘risk averse’ and said this made her feel like there wasn’t ‘a lot of hope’.
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But it kind of was always with this kind of ‘We’ll dip your toe in, we’ll see how you go,’ and you know. It was kind of very risk adverse, so it didn’t, for me it didn’t feel like there was a lot of hope. And I just felt like it kind of crushed my spirit to an extent, in terms of what you can and can’t achieve. So yeah, so I do feel like at times I got listened to, particularly with that therapist that I had for three years that they kind of recognised that I was so angry at like the whole mental health system, that I was just ready, well, had no optimistic thought of where that was going.