Although some of the people we spoke to did not mention their childhood or adolescence, many did. A few talked about positive memories they had of growing up, such as Allen who said his childhood was ‘relatively happy’. For others, childhood or their teenage years were a time of change and stress.
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Early childhood
School and growing up
Seeking help
Charlie experienced anxiety attacks in the classroom from Year Five and stopped going to school without telling anyone.
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Well, looking back, this is before diagnosis. I think it was, I was in Form 5 and I was having anxiety attacks in the classroom without letting anyone else know. And my anxiety just increased over time or a short period of time. I just stopped going to school. I didn’t say anything to anyone. I didn’t even tell my parents, I just stopped and I was – that was it. So it was my anxiety, in the classroom, yeah. I didn’t ask or talk to the principal or the teachers or anything, I just stopped going and there was no follow up or nothing, so I just, yeah…
Vanessa grew up on an army base where she felt safe and played outside a lot. Although she was made to feel an outsider at school, she did very well academically.
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So I had a life that was in an army base at [regional town]. It’s no longer there and we played in the bush mainly so I had a really great empathy with birds and animals and the bush. Then I – we grew up and we went to [a regional town], where they trained the people to go to Vietnam. So we used to sort of go to the [regional town] where they trained the men and we’d do lots of stuff so I had a really, fairly safe environment to grow up in, in army camps but we were always made to feel outsiders at the schools that we went to.
It didn’t worry me and I always had – I was always friendly with everybody and did very well. I usually came top of the class and was an avid reader and I used to – when we lived in [regional town]. And I ended up as school captain there at a fairly large school at [school]. And I used to be friendly with people from different [backgrounds] who lived nearby but they were different ethnicities. I went to the school in Year 9 and I had to catch up all the work because I’d only gone to a primary school up to Year 8 in [state].
So I was really behind the eight ball and had to learn a lot but I was very friendly and became a prefect and people used to come and ask me for help with problems because I don’t really – I’m not really frightened by authority figures – and so I was pretty well known throughout the school, and on the weekend I used to hang out with kids who were in the kids’ remand centres and things on the weekend.
Early childhood
Most people didn’t experience being unwell until they were in their teens or adulthood. However, some talked about feeling as though they were ‘different’ from their peers from a young age. Lisa described herself as a ‘moody or melancholy child’ and said she didn’t seem to have the same dreams, hopes and ambitions as her peers. A few said they had been unwell in their infancy, and were later told about this by their parents. Ann described her parents noticing ‘things weren’t quite right’ when she was two years old. When she was a young child, she heard distressing voices that caused her a lot of anxiety. Later, she experienced visual hallucinations, and said she didn’t make friends at school because she already had ‘invisible friends’.
Tanai described being ‘very repetitive, very obsessive’ as a child and used to organise her toys rather than play with them. She didn’t like people and remembers crying and feeling sad for no reason.
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Well from the very beginning my Mum had a virus while she was pregnant with me and the theory is that it has done something to my brain in utero. Like that’s what everyone is kind of thinking – always kind of weird, was never, like as an infant I couldn’t be hugged. I wouldn’t – I’d cry if people held me. Mum had to put me on pillows and hold a bottle up to feed me because otherwise I’d like flip out and [makes angry noise]. It was always really weird. Never very touchy, never – I didn’t like people that much. I used to run away from people.
Like I was four and mum would have playdates organised for me and as soon as they’d knock on the door I’d run and hide in the cupboard. Because they’re loud. So like very, very odd. Some people have mentioned like possible pervasive developmental disorder because of the way I was as a child, like very repetitive, very obsessive. I didn’t play so much as organise my toys, re-enact historical scenes, and then put them away kind of thing. Like it was very weird. And the first time I remember thinking something ever was wrong I was like six. I remember I started crying – I was in the garage with my stepdad and I was crying and he was asking me like, “Why, why are you so sad? What’s wrong?” And I had no idea and I told him like, “I have no idea. I am just so very sad”. And that was the first time I ever remember feeling like depressed, which is weird.
A few people had difficult relationships with their parents. As a child, Maria had to look after her Greek parents who did not speak English. She was her father’s carer, and always felt a lot was expected of her. Simon’s mother was herself unwell and she attempted suicide when he was three. Simon said his mother didn’t recognise her own illness and during his childhood, she would tell him he was ‘evil’ and ‘sick’.
Although painful memories from childhood could be difficult to recall, a few people described how being mistreated or abused had effected their mental health. Jenny described being left with another family for three months when she was six years old while her parents went overseas, and said the other family ‘played mental tricks with my mind’. Although she has difficulty remembering what happened, she said, ‘I am sure that I had a very traumatic experience there and that’s probably impacted on my later experience of mental health issues’.
Simon, who is transgender, talked about being abused by a doctor in his early teens and suspects he was abused by an uncle whom he never felt comfortable around. He’s ‘blanked out everything to do with’ his uncle.*
* Please be aware that some people may find the content of this clip distressing.
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I suspect – I know I was abused by a doctor when I was 12 – 13. But I suspect also as a young child, there was – I stayed with an aunt and uncle for a couple of weeks. Now I can remember staying with my great grandmother, when I was younger than that. I cannot remember one single event of staying with my aunt and uncle. But there’s things that, like I’ve seen photos. I don’t remember being there and having them taken, and yet I remember so many details. But it’s like I’ve blanked out everything that was to do with them. And I never felt comfortable around him, even when I was older. And also my birth mother said that he interfered with her as well. But the doctor, there was no excuse for.
So that was when you were 12, did you say?
Yeah.
You were 12.
I don’t know. I don’t expect mum and dad actually asked him, asked the doctor, GP, “Please refer us to somebody”. But the GP somehow managed to get them to agree to get me referred, because I was going to be tall. Now this Doctor [name] had a program that they called the ‘Tall Girls’. There was a follow up study done many years later, and found that there were a lot of problems. But I – one of them is that every single appointment, we would get a full hands on, internal and external examination.
Oh dear.
Now you tell me that that was necessary every six weeks – not medically necessary at all.
Was it around that period where you would, would you see that period as a critical time where you noticed that things were happening, other things were happening?
What, regarding gender?
No, I guess mental health?
Oh yes definitely, yeah!
School and growing up
School was an important part of childhood for many people. While some found school stimulating and did well, others found school uninteresting or felt that it had exacerbated their distress. Ann described herself as having a ‘lack of devotion to school’ and coming home and ‘sort of indulg[ing] my fantasy world rather than doing my homework’. For some, anxiety over achieving well at school was a big part of their childhood. Lisa achieved good marks at school but said ‘part of that pressure’ to do well and get into university contributed to the way she ‘handled’ her eating disorder and self-harming.
The pressure of attending Greek school on Saturdays and church on Sundays on top of mainstream school meant
Maria had no time to rest. By age 20 she ‘couldn’t cope’ and was admitted to hospital.
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I had so much schooling. English was my second language, so I had English school, Monday to Friday, Greek school from prep or grade one. And that was every Saturday and then every day Sunday was church, so really didn’t have any time to rest. And I’ve had, right up until 19 when I sort of, just was angry and upset and inconsolable And I was 19, I was, oh maybe three or four months short of my 20
th birthday and I couldn’t cope, I couldn’t go, I studied at [university] doing fine arts, at 19 I was in my second year.
And halfway through I just couldn’t go to school and I was upset and angry and all that sort of stuff, my dad took me to the GP at [hospital]. And I threw all of the doctor’s paperwork on the ground, he got very upset obviously. And so he decided to call two police officers who came in a divvy van, they took me there.
Sometimes the stress of school was made worse by other serious events happening in a young person’s life. Niall described being bullied at school and experienced anxiety from the age of 11. He said his anxiety worsened after a fire in his family home. He felt that this contributed to the development of obsessive compulsive disorder, with which he was later diagnosed. By the age of 16, it had become a ‘major disability’.
The transition from primary to secondary school was mentioned as a critical moment for quite a few people. People mentioned peer pressure, challenging friendships or struggling with the demands of secondary school. For Tanai, primary school had been ‘normal’ and she was ‘pretty good’ until she started high school, then ‘school just went pretty much downhill from there’ and she was ‘very, very depressed’. Her ‘self-esteem just plummeted’ and she attempted suicide when she was 14.
Allen described having a happy childhood and enjoying school. Everything changed when he moved to a private school where his father was a teacher and felt that the pressure to succeed led to his ‘unwellness’.
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But we had a relatively happy childhood. We participated in all the usual things. I was into sport and I loved making things out of wood or playing footy in the backyard or cricket or tennis or basketball or, you know, totem tennis or drawing. I was quite good at art. I was a good runner. I used to run in athletics and win a few prizes. And then later, I’d do cross-country running and became good at that. And I was good academically at school. Although that wasn’t really manifest as a child because it wasn’t so competitive an environment.
I was nine years of age when I ended Grade Four. I went from the local primary school in the south eastern suburbs of Melbourne. It was sort of middle class just, you know, middle suburbs. And I went to, I won’t say which school, but let’s just say it was a private school. It was a pretty well-known one and it was close to the city. So it was in a pretty exclusive location and pretty well-heeled boys. It was a boys’ school. I went there and my dad had been a teacher at that school for 40 years even when I entered the school as a nine year old. He later worked for about another five years and retired at age 65 there as I departed Year Eight which was the end of that part of the school. And then I went on to senior school in Year Nine and did a bit of Year 10 as well but became unwell.
So I think the things that led to my unwellness at that school were the pressure to succeed. My dad and my mum were both school teachers. My mum was a librarian at a sort of sister school of that school. And had been a teacher in high schools before she got married. So academic achievement was high on the priority list for both of my parents. In fact my entire family – virtually most actually – were involved in teaching in some way or another.
The transition from primary to secondary school was difficult for
Nicky. She experienced bullying and ‘cliquey-ness’ and she found it difficult to make friends.
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Okay, I grew up as quite a shy girl, especially when I was younger, and I used to try and avoid people. I just didn’t like, like the social connection with people from – I was so happy at school, but if I’d see them outside of school, I’d feel uncomfortable in that. But that was probably the start of it, and then I went to secondary school and I ended up being bullied quite a lot, and it was very internalising, and I never really let my emotions out.
And it just got worse and worse, and yeah, so from year seven onwards, I think that the transition from primary school to secondary school was quite difficult, and making friends and the cliquey-ness between girls and that. And it actually got worse I think, as you may be aware, but Year Eight and Nines are a little bit more, it’s a bit trickier in those year levels.
Absolutely, yeah.
I just didn’t seem to fit in very well, and during my lunch breaks and that, I used to go to the school library and try and get away from – because I didn’t – I had friends, but they weren’t very nice friends. So I used to try and get away from them, but I had one girl in particular who was from primary school, who was a very big bully, and caused a lot of stress and anxiety. And I felt like she was watching me and following me, and you know, and there were a few girls like that.
Early adolescence was also a time when bodily changes and starting romantic relationships created new challenges for people. For Simon, who is transgender and underwent a sex change in his 40s, the changes to his body through puberty were accelerated when he was made to take high doses of hormonal drugs as part of a ‘Tall Girl program’ to try to restrict his height: ‘I was having problems emotionally, because I was being put through a puberty I wasn’t ready for’. Lisa’s moodiness as a child came ‘to the fore’ in early adolescence when she started making herself sick and self-harming. When she had her first serious relationship at 19 she described experiencing an ‘almost overflow of emotion’ and being sick was a way to ‘purge it’ and ‘restore this whole status quo’.
Allen said he experienced a ‘big change in personality’ from Year Nine to Ten. He was competitive, wanted to do well in school and in sports and be popular with girls, but he hadn’t grown physically.
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I had a big change in personality between Year Nine and Year 10. My mind was sort of again fragmenting and I was really becoming a bit unwell and…
So yeah it’s, because it was competitive, I wanted the prize. I mean, I wanted the stellar career, you know, all the awards and the friends, the female friends and all that sort of thing. And I was very, I hadn’t grown a lot physically in that time. So I was a bit, I was not as tall as some of the boys and I was worried about that and thinking, you know, ‘what’s going wrong with me’. When I left school I grew a bit but I was rather short at that time and that wasn’t a good thing to be in the school I was at because, you know, physically in terms of your relationships with the other boys and in terms of your relationships with girls if you knew any. And also in sporting teams in which a lot of things were heavily based. Or even just playing sport at lunchtime and recess. You would, you sort of gained a reputation at the school I was at and people knew you by your reputation and whether you could fight, whether you could, you know, tumble kids over you, over the top of you and, you know, flatten kids. Even if it was only in play.
All this was quite important and I think that it was a funny school. There’s probably many like it or there was at the time. I don’t know how many there are any more but that was how it was and it was probably at many private boys schools and it still is a bit like that.
Anyway in about the start of Year 10 or the second term of Year 10, I just couldn’t go to school anymore. I was so worn out. I was so stressed. I was so. I don’t know if you’d call me anxious, but I was just very, I was burnt out. I was completely burnt out by the whole experience and I just refused to go to school anymore.
Seeking help
A few people spoke about the difficulties of seeking help. Many talked about ‘hiding’ the fact that they were unwell or not telling anyone how they felt, while some used recreational drugs. Allen didn’t get a good school report in Year Nine when he was struggling and said his school was unsupportive and didn’t ‘really understand mental illness’ and the school’s ‘way of solving difficulties was to be critical’. Nicky said her school ‘didn’t really care’ and didn’t want any ‘nuisance or frustration’.
David felt he couldn’t go to see the school counsellor because of peer pressure and because his parents, who were teachers at the school, would find out. It took a ‘complete breakdown’ before he received help.
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But, if I’m completely honest, I mean, I’ve had symptoms since I was about seven or eight years old. I just-I didn’t seek help.
So you didn’t seek help during that time?
No. I was too intimidated. I went to a school where my parents were both teachers at the school and I didn’t have any confidence that the school counsellor would remain confidential and impartial. Not to mention the school was constructed in such a way that if anyone was absent in class, the teacher would be informed of where they were and every student would immediately know that that person was at the counsellor.
And there’d be a bit of bullying and teasing around just being at the counsellor, you know, for whatever reason whether it was job counselling or it was assumed that there would be mental issues. You would be bullied and, you know, definitely suffer from negative stigma in regards to seeking help: a sign of, definitely a sign of weakness.
So did you get any support about those issues at that time?
When I was younger, no. I essentially just bottled things up. I mean I’d, there’s a bit of a family history of mental illness and I’d seen another family member not coping at times but generally just trying to soldier on and ignore the bad feelings as though they didn’t exist. I thought that was the way you were supposed to do it. You know, seeing is as seeing does. It just, I thought that was the way of things until I really wasn’t able to function at all. It took me a complete breakdown to seek help and that wasn’t until I was 27.