People with severe asthma have asthma symptoms most of the time. The disease causes frequent flare ups or attacks that require oral steroids and may cause severe airway limitation causing constant shortness of breath. [Severe asthma toolkit] People with severe asthma that is resistant to treatment have frequent hospitalisations sometimes requiring intensive care management (Chung et al. 2014).
People we talked to spoke about what they would do when they just couldn’t breathe, the timing of deciding that an ambulance and hospital treatment were needed, and how quickly the ambulance responded. Some people made their own way to the hospital as they found the ambulance trip distressing. Others didn’t remember too much of what happened after getting in the ambulance.
John G noted that someone else might have to call the ambulance.
> Click here to view the transcript
Oh, if I need an ambulance, I would just call an ambulance, or somebody would call an ambulance, because at that point I probably wouldn’t be able to speak. Asthma is such serious level, it would not allow me to speak properly. I’d be one word at a time. So if an ambulance is required, I would get an ambulance. If I was here on my own, and I was starting to feel really, really bad, I would call 000, there’s no doubt about that.
Patsy has little recollection of events.
> Click here to view the transcript
I can remember sometimes going to bed and I’m thinking, I can’t breathe and I’d just say, well don’t panic, just breathe slowly and it passes but this one didn’t. And [Husband’s name] rang the ambulance and they were there within minutes. And I guess they put me on oxygen. I don’t know what they did, I don’t remember, it’s all a blur.
Mick doesn’t like ambulances.
> Click here to view the transcript
And if I couldn’t, if I wasn’t getting any better, I would go to the hospital. I probably wouldn’t ring an ambulance again because they put on under a mask and I really got claustrophobic over that. But I could get myself to the hospital. So no worries. That’s what I would do.
A common theme was that people with severe asthma didn’t want to seem foolish or waste people’s time, and so left it till the last minute to call an ambulance or head to hospital. Often on arrival doctors told them that they should have come in earlier. Some people needed other family members to take the decision out of their hands and tell them it’s time to go.
Marg has delayed seeking attention several times.
> Click here to view the transcript
I would take everything, I tried everything that I do and then by that time I thought ‘well, I’m going to call an ambulance’. And each time they said ‘you didn’t have to get to this stage’. So what makes me get to that stage? Probably just go and make a fool of myself.
Kim is happy having the security of being able to phone the ambulance.
> Click here to view the transcript
Oh [carer’s name] rings them all the time. We know them on first name basis too. They know where to bring the bloody thing in, they already have it all, they have all the drugs ready you know when they’re called to this street. They just, yeah, they come straight in, go out, righto how are you going? Bang. So that shows you how often I’m going.
Reference:
- Chung KF ET AL. International ERS/ATS guidelines on definition, evaluation and treatment of severe asthma. Eur Respir J. 2014 Feb; 43(2):343-73