Experiences of infertility and fertility treatment:
A qualitative research and online resource development project
The Experiences of infertility and fertility treatment: A qualitative research and online resource development project is part of the work of the NHMRC Centre of Research Excellence in Women’s Health in Reproductive Life (CRE-WHIRL).
A partnership between researchers from Monash University, University of Adelaide, University of Queensland, RMIT University, University of Western Australia, University of Melbourne, Erasmus University Medical Centre (Netherlands), UNSW, Victoria University, IVF Australia, Monash IVF and the Victorian Assisted Reproductive Treatment Authority (VARTA), CRE-WHIRL aims to address key gaps in women’s reproductive health in relation to:
- polycystic ovary syndrome (PCOS),
- infertility, and
- early menopause (EM).
To learn more about CRE-WHIRL, see here.
The Experiences of infertility and fertility treatment project forms part of CRE-WHIRL’s program of research and knowledge translation in relation to infertility and builds on our past work and Healthtalk Australia online resources on early menopause.
The Experiences of infertility and fertility treatment project aims to:
- explore experiences of infertility and/or fertility treatment among a diverse sample of people presumed female at birth (including cisgender women and trans and non-binary people presumed female at birth) living in Australia via narrative interviews (audio or video-recorded according to participants’ preference), and
- produce accessible online resources based on interview data and excerpts, guided by the Oxford University Medical Sociology & Health Experiences Research Group (MS&HERG) approach to online resource production, to provide experiential insights in infertility and fertility treatment and promote person-centred care.
Professor Renata Kokanović
Vice-Chancellor’s Senior Research Fellow and Director, Social & Global Studies Centre, RMIT University
Professor Renata Kokanović has extensive experience in qualitative health research, predominantly on sensitive health and well-being related topics, with a particular focus on mental health and women's health.
Associate Professor Jacqueline Boyle
Deputy Director, Monash Centre for Health Research and Implementation, Monash University
Associate Professor Jacqueline Boyle is an academic obstetrician/gynaecologist (NHMRC Early Career Fellowship and Career Development Fellowship) with a strong track record in consumer partnership and empowerment, supported by evidence-based education and shared decision making.
Dr Kate Johnston-Ataata
Research Fellow, Social & Global Studies Centre, RMIT University
Dr Kate Johnston-Ataata is an early career researcher with a background in health and family sociology and research-based online resource production, with interests in reproductive health experiences and the sociology of personal and family life.
Dr Rhonda Garad
Senior Lecturer and Research Fellow, Monash Centre for Health Research and Implementation, Monash University
Dr Rhonda Garad is a public health researcher with expertise in qualitative, quantitative and mixed methods research, clinical data hub projects and is a research translation specialist.
A Reference Group comprising people with lived experience of infertility and/or fertility treatment, clinicians, social scientists, and representatives from advocacy organisations, professional societies and public health / health promotion organisations provides advice and guidance to the researchers. Co-chaired by Professor Renata Kokanović and Associate Professor Jacqueline Boyle, the current membership of the Reference Group includes:
Ms Gulnara Abbasova – Executive Officer, Migrant and Refugee Health Partnership
Professor Katherine Boydell – Professor of Mental Health, Black Dog Institute, UNSW
Dr Michael Costello – Senior Lecturer in Obstetrics and Gynaecology, UNSW and Fertility Specialist, IVF Australia
Associate Professor Deborah Dempsey – Adjunct Associate Professor of Sociology, Swinburne University of Technology
Ms Katie Killian - Lived Experience representative
Ms Anna MacLeod – CEO, Victorian Assisted Reproductive Treatment Authority
Ms Melissa Lowe – Lived Experience representative
Professor Robert Norman – Professor of Reproductive and Periconceptual Medicine, Robinson Research Institute, University of Adelaide
Ms Laura Riccardi – Health Promotion Officer (Sexual and Reproductive Health), Women’s Health in the South East (Victoria)
Dr Beth Wilson – Project Manager, Assisted Reproductive Treatment, Victorian Department of Health and Human Services
Ms Holly Zwalf - Coordinator, Rainbow Families Queensland
NHMRC Centre for Research Excellence in Women’s Health in Reproductive Life (APP1171912)