Memory loss was a very common experience amongst people we spoke to across the age spectrum. Memory problems that were frequently cited include losing words, particularly when under pressure or stress; forgetting names and telephone numbers; putting things away in the wrong places; forgetting why you came into a room or what you went to the shop for. This type of mild memory loss was largely seen as a normal part of the ageing process.
Memory loss was a very common experience amongst people we spoke to across the age spectrum. Memory problems that were frequently cited include losing words, particularly when under pressure or stress; forgetting names and telephone numbers; putting things away in the wrong places; forgetting why you came into a room or what you went to the shop for. This type of mild memory loss was largely seen as a normal part of the ageing process.
Janet finds she is more likely to lose words when talking to a group or writing documents.
> Click here to view the transcript
It’s been hard for me to slow down and so I keep active with volunteering but I know now in my 70s that I can slow down and do slow down, although Gypsy [my husband] might not think so. And I find now, like many people my age, I’m losing words so if I’m writing up a policy statement or I’m talking to a group or something, sometimes a word will just totally disappear out of my mind. It will come back, but that to me is a bother because my whole life is really community awareness and getting out and talking to people.
Nora lee has experienced forgetful moments as a ‘brain freeze’, particularly when she is under pressure.
> Click here to view the transcript
That’s what it’s been like the last couple of years. It just seems to be – don’t seem to be handling the pressure as well. And I guess the other thing is the brain freeze. You have so much happening. It’s like the computer just freezes and the brain freezes. Now – since – let’s see, the end of June was when I lost the last contract so I’m only working two days a week now. I don’t have that problem as much. I’ve got a lot more free time which allows me not to get into panic situations, which is probably really good. So I probably had too much on my plate. But that was scary. That was really, really scary. I didn’t like that.
During the interview
Lan cannot find the word she is looking for.
> Click here to view the transcript
So what brought the need for the back operation on?
What do you call that, I can’t remember. What do you call that? I can’t remember. That’s when-
Nine years ago, it’s a long time.
I can’t remember, I used to remember. That is ageing when you can’t remember, it’s like words have been plucked out of my brains, you know, really. I should know it like [clicks fingers], but I don’t. Now that’s a good interview because I’ve forgotten words as I’m talking to you.
People also spoke about the increased effort it takes to learn new things and absorb information, such as what the doctor said during a consultation. People noticed this more when undertaking complex tasks. Both Helen W and Elaine H thought ‘forgetting’ might have something to do with the brain receiving too much information. An important way of coping with mild memory loss was to not worry too much about it.
Things do not stick in
Helen W’s memory as easily as they used to. She is not worried about dementia, it is more like the brain being ‘overloaded’ at times.
> Click here to view the transcript
I mean the kids these days, pick up things, they can use these iPads and iPhones and all this equipment when they’re seven years of age or something, the little rats, I think “Oh” whereas things don’t stay in your brain as easily as they used to, you have to think “Oh no, I forgot that” or “I forgot to do this” and I don’t think it’s dementia, I think it’s just there’s too many – your brain gets overloaded I think at times and I think “Oh well, I forgot that, never mind, it’s not a big deal” I remembered it now but I’d forgotten to do one of ten things, so you just don’t worry about it, don’t let it get to you, I think it would make it worse if it did.
Elaine H is experiencing more memory loss but this has not stopped her daily routines.
> Click here to view the transcript
Annoying at the moment. Why can’t I remember that, I’m just like my father, things like that and eventually it’ll come to you whatever you were thinking of but I find I can’t, where I used to remember telephone numbers for an example, I find now I can’t remember them all, I’ve got to look it up in the book. Things like that, little things. But I don’t forget to eat and I don’t forget to clean, things like that.
What about the short term memory versus long term memory?
Long term memory is pretty good. I can remember a lot from when I was a child and growing up and all that stuff. I think in this day and age where there’s information thrown at you probably on the wireless, on the TV, whatever, all this information and I think I’m just thinking oh blow it, I don’t have to remember that so I don’t.
Some degree of memory loss was perceived as a normal part of ageing. It was most likely to be experienced as an ‘annoyance’, but something you can cope with. Nora lee (shown above) was the only participant to describe a forgetful moment as scary.
Chris finds it annoying when he cannot remember little things. Talking about it with his peers makes him realise it happens to everyone.
> Click here to view the transcript
You know that you don’t remember things too, that’s a real feature of getting older and everyone of our age group says exactly the same. We laugh about it but it is a bit annoying when you can’t remember stuff that you know a few years ago you would’ve remembered so easily.
Little things or?
Little things, “Why did I come into this room? I came down here to get something what was it?” I find now in the work situation that I don’t recall things that have happened as easily as I did. Eventually I do but not as easily as I once did and it’s annoying rather than a real negative. You know in talking to your peers that it happens to everyone so you don’t stew about it it’s just something that happens that you accept and deal with.
People distinguished between what they described as ‘normal’ lapses of memory and warning signs of dementia. Those who have had a parent or relative with dementia described their fears about having the same condition. Several participants described the decline of their fathers who had dementia. They were more likely to look for signs of memory loss and attribute it to inheriting their father’s genes.
Marjorie is alert to signs of her own memory loss because her father had vascular dementia in his 70s.
> Click here to view the transcript
The mental thing – and I should also say it’s a spectre in my mind, and I’m looking for it. So people tell me that I’m over-sensitive to it because my father had vascular dementia. He was a working class man who was dux of the school, and very smart, but in his 70s he developed vascular dementia. And by his 80s, he was, you know, not Alzheimer’s but well demented and forgetful and all that sort of stuff. And I am watching for signs of that, you know? I’m thinking oh my God, is this going to happen to me?
Merrilyn describes what it is like caring for her husband who has dementia and the decision to put him into care.
> Click here to view the transcript
The decision to put him into care was possibly the easiest decision I’ve ever had to make. It just got to the stage where I couldn’t cope physically, having to change the bed two and three times a night, change him. Occasionally having to change myself. It just – yeah, the incontinence was the hardest part of it. Dementia I could have coped with. I probably still could cope with it, but it’s the incontinence that was the straw that broke the camel’s back, so to speak.
Did that come on quite suddenly, or did that develop over time?
The incontinence was developing over time. The dementia was more or less overnight. I took him to the doctor one day and the doctor said something to him and he couldn’t remember. He had three falls in ten days. After the third fall he was put into hospital. The doctor asked him similar questions. His memory had completely gone.
What was that like for you, Merrilyn?
It’s hard to say. I lost my father to dementia, so it’s – having worked in the nursing homes with dementia patients, I sort of knew what I was letting myself in for. I’ve never really thought about it.
Participants who were living with more severe forms of memory loss put strategies in place to help them remember more complex information. For example, it was important for people to bring their partner or one of their children along to doctors’ consultations and to write notes or have the doctor send notes home. Gil describes the confusion he experienced over a diagnosis of dementia, which illustrates the communication breakdowns that can happen even when good strategies are put in place.
Gil mistook his diagnosis of dementia, even though he brought his partner along and took notes during the consultation.
> Click here to view the transcript
Last week I was very saddened, and a little bit depressed, because I went to my neurologist after having lots of tests done, x-rays and ultrasounds, and I came away – would you believe – from the last consultation believing yes, he said “Yes, you do have dementia from the results of all the battery of tests”, but apparently — I had yum cha with my doctor friend last Sunday, who’s a specialist in some area, and he said “No, look I’ve read your report, and you do not have dementia. No it doesn’t say you do have dementia.” So I don’t know how I got that muddled up, but it was nice to have it clarified at least, by a friend, that “No, the report says you do not have”, and I’m surprised that my neurologist didn’t make it clear to me when I left the results, the consultation, that I had in my mind that I did have dementia.
Because certainly one of the things he said “Look it’s not bad enough to have to have medication. You’ve passed all the tests and other things”, and I thought — Because my partner was with me in the consultation room, but I was there with my diary taking copious notes, writing down things like “right mode” or “lobes” and this and that, and he was busy showing all the x-ray results, and I was trying to just put on paper what he was saying to me so I could recall it. So that’s probably why I missed it somewhere, and I really don’t know how I walked out of that surgery saying “Yes, I have dementia there, or coming on”, but I certainly remember him saying “It’s not bad enough to have medication at this point of time”, so I think that sort of supported… And maybe at 72 I wasn’t concentrating so much and I misread it, but it’s a shame it took me a while [laughs] before my friend, other doctor said “No Gil, I’ve read the report that the doctor sent to me and you do not have dementia”, and it’s lovely to… It would have been different too, if it was an oncologist saying “Yes, you do have a tumour” or “You do have cancer” and that kind of, the thoughts that would flood into your head would be “Oh my God” and think of all your friends that have had cancer and the results. But dementia didn’t worry me because I think it’s one of those things that you read about and hear about, and Hazel Hawke and all that stuff, and it’s something you can cope with.
Many people, whether or not they had a history of dementia in their family, spoke about the importance of keeping their mind active as they grow older and the need to ‘use it or lose it’. Some people are learning a new language, others do puzzles such as cryptic crosswords, Sudoku or play chess. Everyday tasks become important for keeping their mind engaged, such as continuing to read, write, use the computer, going for a walk and interacting with children.
After
Lyn had a stroke she and
Robin started doing cryptic crosswords. Lyn also takes the herbal supplement turmeric to prevent Alzheimer’s and Robin uses the computer to keep his mind active.
> Click here to view the transcript
Robin: You know, we joke, senior moments all the time, but really you do forget things, you know. We do forget things and keep reminding each other.
Lyn: Well that’s why I take the turmeric. Turmeric is supposed to ward off Alzheimer’s, so I make sure I take it.
Robin: Yes, all you can do with your mind is just to read, do puzzles, keep your mind active, you know. I mean, anything I buy I always do my due diligence on the computer, you know. I research to the nth degree. Some people say I’m anal about it, but it just keeps your mind active, you know.
Michael is blind and relies on his memory to recite verses from the Bible.
> Click here to view the transcript
Tonia: We have our memory all right. He has a better memory, because, if I ask him about a verse from the Bible, he normally knows the chapter and the verse. He would, for example, say, “It is in the letter to Romans or Corinthians”. And then I would find it quickly.
Michael: But I haven’t been able to read for a long time now.
Tonia: He has a better memory.
Michael: It’s been more than 10 years that I am unable to read.
Tonia: And I read to him every day.
Michael: Yes, and Tonia [my wife] reads to me.
Tonia: I also read magazines and newspapers.
In Russian?
Tonia: Only in Russian.
Colleen finds spending time with her grandchildren, as well continuing to work, keeps her mind active.
> Click here to view the transcript
Definitely, yeah, keeping yourself active, particularly your mind, because now I have grandchildren, and they keep me pretty well occupied, too.
So you’ve talked a bit about keeping your mind active. Can you tell me a little bit more about that?
Well, being involved in organisations. I always seemed to be dobbed in as a secretary, publicity, so you’ve got to be forever conscious of what you’re writing in newspapers etc. It certainly keeps you alert, there’s no doubt about it, keeping your mind active keeps you alert. If you get a bit tired sometimes through being at a computer all the time, just go and do some other sort of work, and that’s how we do it.
Marlene believes that exercise and a positive attitude are important for maintaining overall mental health.
> Click here to view the transcript
We should all walk every day. We should. Even if it’s only for 30 minutes and we should be walking for our brain. People look at me when I’m talking about this and they say, “What do you mean ‘Walking for your brain’?” I said, “Because it’s the oxygen that our brains get when we’re walking outside in the fresh air,” and I heard Ita Buttrose the other day because she’s the head of the Alzheimer’s Association in Australia, that we have to get off our butt and the sooner we get off our butt, the better our brain health will be. So it’s called oxygen to the brain and I think that’s definite, you know. I would never say that tomorrow something couldn’t happen to me but I’ve always been a believer that life is about what you get hit with and how you handle it. No matter what, we all get hit with something in our lives. I mean, I lost my dad at nine. All of us, no matter who we are, get hit with something. It’s how you handle what you get hit with is the secret of life, I believe.
Very few cases of dementia are inherited. Having a family history increases the risk, but older age is the biggest risk factor for dementia. See Dementia Australia for more information.
There is no evidence as yet that turmeric or any other supplements or natural therapies are effective for preventing dementia, but research is continuing.