Deciding where to live during various life stages was an important consideration for people we spoke with and many were in the process of transition. When to move, what type of accommodation, where and who helps to make those decisions were all important issues people spoke about.
People who wanted to remain in their own home did so because they knew everyone in their neighbourhood, lived near family, amenities were close by, they liked to have space, and they felt comfortable there. People spoke about the sense of attachment they had to their house and were prepared to pay for assistance maintaining it.
Dot feels a sense of comfort in her own home and likes that she knows where everything is.
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What is it about being at home that’s important to you at this stage of your life?
Well the sense of comfort that you’re in a surrounding that you’ve created and suits your needs. As I say, it gives you comfort and there’s no effort because you know where everything is. I’m fortunate to live in what I call a long skinny house, and with an upstairs it’s fantastic, and I chose it.
Lyn and Robin like their neighbourhood and did not want to move away. They decided to renovate their house instead of downsizing.
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And that’s one of the problems you’ve got, you know, when you get older your house is too big for you, you want to downsize, but financially we don’t need to downsize, so we’re saying well, if we do downsize, go to another location, all our friends here that are neighbours if you like, we see them on the weekends, we see in the week, we won’t see them anymore, you know, unless we have planned visits and so on. So we said, well we’d rather just put up with a big house, more cleaning, more garden, but at least we’re in a neighbourhood where we know everybody, everybody knows us, you know, go for walks, we stop and talk to people. We just live across the road here. We might as well just stay there. That’s why we’re renovating. We said, well instead of moving out we’ll just spend some money and renovate the house. That’s what we’ve done.
As people’s health changed, having space of their own was identified as important. This applied to people who rented as well as owned their own home. The availability of suitable accommodation for older people was lacking in some areas and communities. For some people, sharing accommodation with relatives was stressful, for others this was supportive and comforting.
Elaine M would like a place of her own because her house is often crowded and it causes her stress.
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If a Yolngu, like living in a crowded house, overcrowding house there’s people sleeping on the lounge room or wherever, there’s five or six people staying in that room, it’s not good for us. It sometimes gives me stress when I am talking and that’s when I decided to get, you know, heavy and I feel sick and I’m worried. I need sometimes my own house or my own place to live so I don’t have to get worried for other people. And I get sicker and sicker or sometimes I feel I’m the one who’s cleaning up but not the other people. They just want to sleep in that house, not enough houses here, not enough service.
Living with family was another alternative to remaining at home. People who had lived with their children or grandchildren found it a positive experience. Access to home care services was vital for people with health or mobility problems to remain in their own home longer. These supports included maintenance assistance such as rails, ramps, or a chair lift. Home, personal and respite care services also assisted individuals to remain at home.
Guymun wants to remain at home where she has her granddaughters to help her but she also appreciates that the aged care service can help with food and bathing.
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Guymun (translation): Aged care is my future for giving food and baths and looking after me.
Translator: Help them in their homes. Just here? Where your heart is?
Guymun (translation): Because of those two granddaughters
Translator: Yo, I believe that I wouldn’t go to a foreign place where I don’t know anyone. I would like to stay here. Manymak [good] supporting, aged care, but I would like aged care to support me at home because they promised, my two grand-daughters, that they will look after me at home and still get support from aged care.
Some people who lived in larger houses were thinking about downsizing or moving to a smaller place, mainly because the garden or pool was difficult to maintain, or there were too many stairs. However, the process of doing this was a daunting task, and people were unsure where to start in reducing their possessions and what to do with them.
Barrie and Helen B have lived in the family home for 40 years and are now thinking about downsizing. Barrie is trying to find a good home for his books so they are not thrown away.
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So what’s that like, making that decision to move on from the family home?
Tough. The kids are a bit – I think they’re over the fact that, they realise that’s going to happen because they realise it’s too much for us anyway, so that’s not a problem, but it’s finding the next place, in terms of you tend to accumulate lots of stuff. And I’ve got lots of bits of paper. So that’s one of the things that I’m doing at the moment. I’ve got not a huge library, but I’ve got a library, and the field in which I worked is now not being taught at university so I was going to give my stuff to a university but it’s not much good if they don’t teach adult ed anymore. So I’ve been looking around for somewhere where I might put it, and of course I’ve sort of done this before but you get old and stupid, and the first question I was asked was “you have a list of course”, and I said “oh yeah”. “When you’ve got a list Barrie”. So the author, date, all that sort of bumf. I’ve been doing that gradually and finding out that it’s not just a matter of having to do them all, you’ve got to do them in bits and under headings and look as though you’re somewhat organised and stuff so that’s interesting to sort of decide which things you can bear to give away, I guess, is one of the things that’s – Or what you think you might need again. I may not need it but I really love that book, or I really like the guy who wrote it or.
So yes, it’s – Like all things, I’d hate to see them go to the tip sort of thing. That would be very sad. And I guess I’d work … I’m prepared to devote a fair amount of effort to try to ensure that that doesn’t happen, but they need to have a good home.
When deciding to move, several people pointed out that it was important not to leave it too late, that it gets harder to deal with selling a house and moving as you age and it was not fair to leave the task to their children. However, other people were reluctant to make any plans and said they will make the decision to move ‘later’ or when the need arises.
Lyn and Robin plan to move to a retirement village in the next 10 years. They understand if they leave it too late, moving will become more difficult.
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Lyn: No, I’ve seen people struggling in their homes when they get really old. So when we move – well that’s my plan anyway – we’ll move while we’re able to, because I think if you leave it to too late you can’t do it. Like, his mother won’t move and she’s 87.
Robin: You get stubborn when you get old.
Lyn: They don’t cope with the house.
Robin: She can’t cope with the yard.
Lyn: And the garden, et cetera.
Robin: But she won’t move. So we will probably, within 10 years we’ll probably move to a retirement village or something like that, you know.
Lyn: I’ve got a brother and his wife in a retirement village not too far from us, and theirs is great. They bought into it.
Robin: It’s a Catholic retirement village.
Lyn: And the church is right on the-
Robin: It’s a Catholic retirement village. It has a church on site and again, like-minded people, you know.
Lyn: The only thing about living in it is that too many people die around you.
Robin: That’s why we’ll wait until we’re a bit older.
A retirement village was one housing option mentioned by quite a few participants, either because they found it an attractive option or because they did not want to live there. There was a perception the houses in retirement villages were too small and the demographic was too narrow. The people we spoke with who did live in a retirement village were very content there.
Elaine H feels safer living in a retirement village and enjoys the activities they have on offer.
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My husband was alive at the time and it was his idea. I think he wasn’t as good as I thought he was in his physical thing, he was getting older and whatnot and it was his idea to go into – I wasn’t really fussed about retirement villages but I’m glad he did and I’m glad we did, yeah.
Why are you glad?
It’s just you feel safer than you do in an ordinary house on your own. I mean it’s a house, separated house but it’s in a village. Yeah, you feel safer.
You can be as busy as you like in a retirement village, there’s always something to do. [My husband] was very much a people person where I’m not, I’m quite happy just in the home fiddling around, talking to neighbours, doing all that. I go to – in the village they’ve got what they call a Chatterbox Club and we knit for the people that haven’t got anything or knit for whatever and yeah I like doing that, that’s good. But there’s a lot of stuff on in villages like that if you want to go to it.
Dorothy loves getting the sun in the morning and is content living in her retirement village.
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What are you hoping for, or what are your goals as you continue to grow older?
That my bits keep working. That I can stay here until either I die or my family decide that I need nursing home care. And that I can stay being able to see and knit and hear a bit. And I’m totally content with living here and getting the sun in in the morning and I just think I’m incredibly lucky and grateful, and I think you’ve got to sometimes appreciate what you’ve got, not whinge about what you can no longer have, and that sometimes takes some doing. But my granny used to say “weep and you weep alone, laugh and the world laughs with you”, and that hasn’t changed.
People expressed a range of views about nursing homes. Some saw it as the best option as they became more frail; others saw it as giving up their independence. People who did not want to go into a nursing home associated them with poor quality of life, a place where people go to die. They were also perceived as having too many rules or that residents can be neglected. There was little differentiation between high care and low care aged accommodation and people’s perceptions were influenced by the experience of others they knew.
Dolores’ mother was in a nursing home and she hopes she never ends up in one.
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Yes, I’m hoping to have a heart attack in the garden. I said to my doctor “If you find me half dead in the house, don’t touch me”. I wouldn’t want to be lying in nursing homes for years. My mother was a long time in a nursing home, I visited her three times a week and I wouldn’t wish to anybody.
But for the people who are there and not quite with it, it is just an existence. My mother would say, she was not a stupid person – her father was an engineer, she just didn’t go to very much to high school in those days. She was born 1895 and she was thinking when she was older, she said “Why so many people can’t walk?” She said “Why don’t they get a pill or something to get better?” But she could walk, but many people couldn’t because she was not quite there. But it is more difficult for people who visit them to see them in there.
Hans would rather die than go into a nursing home, he wants to maintain his independence.
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You say think about it but I won’t think about it and I’m telling you right here and there that to go to an old age home, it will kill me. That will kill me and I’d rather die. That’s how I feel about it.
Why is that?
Because I want to be independent as I am now and it’s alright if you meet the right people, but what about you have to put up with certain idiosyncrasies with people. I mean I like to look from the good side but some people, they might be – they might not be really pleasant and that I like to avoid, I don’t want to see it because the way I am I’m still optimistic about things. And to go into an old place, if they were all nice people, yeah that’s different but you never know. But the only good thing about it is they might supply your food but I can do my own cooking and as far as I’m concerned I hope that I’ll die peacefully in my bed and forget about it instead of suffering of any disease.
Not everyone was opposed to going into a nursing home. Lan has told her sons that if she becomes incapable they should put her in a nursing home and not feel guilty about it. The people we spoke to who were living in a nursing home did not find it so bad – life was easier than living on their own, they felt safer should they have a fall and the staff were very good. The main complaint from nursing home residents was the loss of independence and having meal times that did not suit them.
Ron has been living in a low care nursing home for 10 years. He finds he has everything he needs and is reassured that he will be able to get assistance if he falls.
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Well it was a matter of age I think. I think that’s where the age started to tell. That was 2002, so what was that, I was 85. And I knew my limitations, and the place that I visited so much because of the friend that was in there, I think that stirred me up to say maybe that’s what you should do. Best decision I ever made.
I’ve got everything I need here, and the experience of gradually condensing from a full house down to a unit, and then into a mobile home, and then into this world was a gentle curve, you just got rid of a little bit more each time you made the move. And now it’s condensed to it’s absolute minimum, but everything I’ve got here is what I need. Computer, TV, meals, care, everything.
There’s still a lot of people, as you may well be aware of, who if you mention to them at say 85, “How do you feel about going into one of the” “Oh, I’m not ready for that yet!” There’s plenty of that around. And even older. But they’re the ones that they find a week later lying in a room somewhere. So I’ve had a bit of experience along those lines, and that’s one of the reasons why I did it at my age, you just don’t know what can happen, or will happen when you get to that age. People just topple over.
Fred describes the nursing home policies that make him feel like he’s lost his independence.
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But you give up your independence, in that they say, “Right now give us your medicines. We’ll give you the medicine” and then as a matter of interest I wanted to put some eye drops in, so I asked their chemist to get me some eye drops and they wanted to take control of those. They were telling when I needed them and I said, “Nonsense, I’ve been looking after myself and I’m going to continue.” You’ve got these horrible hours they have meals at. You have lunch at twelve o’clock and dinner at five o’clock, which makes for very long evenings and afternoons actually and you do definitely get bored at times. They have activities, but I don’t want to say more than I should, but I’m not very impressed by the activities, I mean that was a disappointment to me. And also I thought that coming to a place where there’s a lot of people living, although this is a fairly small section of it, that I would find other men in my position that I could make friends of and get used to and talk to, but that hasn’t really eventuated. There’s a couple of people I do talk to, but generally I haven’t been lucky in finding companionable people. That’s possibly my fault to a large extent, but there aren’t that many men here. Of say about 32 people in this section, 24 are ladies, widows and the others are men of varying interests and so on, so it’s not easy to – socially I haven’t found it easy to settle down. As I say, some of that may be my fault, because I’m a loner in many ways and just, it’s controlled living which one is not used to. That’s what I mean by institutional living. The food is good. You have your bad meals, as you do at any hotel and generally I’m happy with the food. The staff are very good, they’re helpful and they go out of their way to help you, so I’m really happy with the staff.
People made the decision to sell their property, to move to a retirement village or to a nursing home largely because they did not want to be a burden on their children. However, these decisions were rarely made independently and children were often involved in housing choices, for example, by making appointments to view nursing homes, urging them not to sell the family home or inviting their parent to live with them. When couples moved it was normal for one person to want more strongly to move than the other.
Brian X’s children want him to move to a retirement village interstate to be closer to them. Brian X feels it would be unfair not to consider their wishes.
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As I say, I’m 79 now. The kids are looking at all these retirement villages and whatnot in Cairns but I’m not ready to do that yet, so I’ve still got a little bit of time I hope.
No, I think it would be unfair if I didn’t think about it. It’s not fair to me to fall off the twig here and expect them to pick up the traces and clean up everything after me and sell everything or do whatever is necessary. I don’t think that’s fair but if I’m closer, it would be easier. I don’t think they’ve got any idea of ever leaving Cairns. They’re firmly entrenched with their own residences and their own work.
Even though others were involved in making decisions to move it was important that people had ownership over the choices which affect their lives. Merrilyn had to put her husband into a nursing home because he was suffering from dementia and incontinence. She describes how difficult it has been for him there.
Merrilyn’s husband is not settling into the nursing home. He keeps asking when he is coming home.
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The grandchildren, great-grandchildren. As each new baby was born – [my husband] he loved children. He still does. It’s getting harder for him now, because the children are a little bit unsure visiting him. They’re not comfortable with the nursing home, so I have to bring him out of the nursing home to have quality time with the kids. Because it’s only a recent occurrence for him, going into the home, I can’t bring him back here as yet. I’ll wait until after Christmas before I bring him back to the flat.
Why is that?
AHe keeps asking when is he coming home. I keep telling him, when he stops wetting himself, wetting the bed, then he can come home. I think we both know that that’s never going to happen. He’s a little more settled, now that he’s got his own TV, but until he got the TV it was every time I visited, “When are you coming to take me home?” Finding excuses was the hard part. Sorry. Finding excuses to leave him where he was, was the hard part. But he’s slowly accepting it. Last week I didn’t visit him as often as I would normally have visited. When I went to see him on the Friday, he grabbed hold of my arm and wouldn’t let me go. Then after a while he settled down.
Regardless of the type of move people were contemplating it was important that they remained close to family and friends. People sometimes relocated from overseas or interstate in their senior years to be near their children. Being in close proximity to amenities and in a community of like-minded people was also important. All three Aboriginal participants we spoke with emphasised the importance of being able to ‘age on country’. Oscar was born and raised on Elcho Island and feels that is his home, while Guymun is adamant she never wants to be transferred to Darwin if she needs higher care. Elaine M explains why it is so important for Yolngu elders to be cared for by their family and on their land.
Elaine M says that if you take old people out to the bush to spend time on the land where they were born, it gives them identity and authority and heals them.
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But for Yolngu we always have Yolngu way of living like taking them out bush, bringing them back to nature or giving them identity or giving them authority so they can be strong. So they can see themselves they are leader of the community and leader of the tribe. That way it heals, sometimes, the nature and the land and the creation of the place that we were born or we come from we’re not thinking about sickness, we’re not thinking about – If a Balanda person divide us separate and say “You’re in this area whether you can look after yourself or someone from the aged care come and provide you something and look after you or medicine,” or something like that. We feel that is not connected, Yolngu people are not connected to that system. We are different because that foreign system is introducing to Yolngu, old age carers or whatever. Then we feel that we’re not connected to that and we feel more getting into the deepest depression or deepest worry. We feel that we are going to get sick or die and get older quicker. But if we stay and live in this nature, Yolngu nature, it’s everyone’s nature but to us it’s very, very healthy living.