Mothers, as well as a few fathers, talked about social support during experiences of antenatal or postnatal depression. In particular they talked about disclosing perinatal depression to others, the kinds of support they obtained from members of their social network, and the impact of perinatal depression on relationships.
Parents' approaches to telling others that they were experiencing or had experienced antenatal or postnatal depression were shaped by attitudes towards perceived stigma of mental health issues, and their relationship with the person they were telling. Some parents were concerned about stigma and for this reason were careful who they told and for what reason.
Other parents took the opposite approach and consciously decided to be open about their experiences in an effort to help de-stigmatise perinatal depression, or felt being open allowed them to be able to explain aspects of their behaviour. As Melissa, who experienced postnatal depression after her second child, said: 'To me, telling people was not excusing my behaviour, but made them understand.' Fred said he was comfortable being open with his wife, male friends and workplace about his depression before and after his second child's birth as a result of learning about postnatal depression among men in a 'men-only' antenatal group he had participated in.
Zara said she was more willing to be open about her second 'bout' of postnatal depression than her first because her second experience had not been characterised by 'intrusive thoughts'.
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I've kept it fairly contained. I'm quite a private person as it is and as I was saying a little earlier, the fact that the PND with my daughter came with the intrusive thoughts, it led me to be a lot more contained about it with people who I didn't know so well. So I confided with close friends about it, but interestingly most of my close friends don't have children so it's still a bit hard for them to relate to that. And if the mothers group - I got the postnatal depression in the early stages of the group forming so I missed a lot of meetings so I felt like I never really had a chance to really weave into the fabric of that group.
So, even with my partner I could tell him if I was having what I would call a 'thoughty' day. But I couldn't - I didn't feel like I could tell him much about them, and I don't think he really wanted to know much about them either. Because that would cause him distress. My parents were really good at the crisis stage but I wouldn't sit down and talk with them about it at length.
Whereas I think this time round I feel a lot more comfortable, I've been really straight with people, so disappeared to [city name] for three weeks ... if people wonder what I was doing in [city name] I just told them, "Well I had a bit of a breakdown, I've had a relapse of the PND," and partly because this time round it's not so loaded with stigma. Because the thoughts aren't a symptom this time around and secondly, I just feel a bit more confident or something. I just feel like I should be upfront with people and if they can't tolerate it then that's fine.
Anna described her reasons for speaking up about her experiences of perinatal depression, and said she had encountered very few negative responses.
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And that's the biggest thing that, for people to look at mental illness as an illness that happens to be affecting your brain. And therefore just be kinder to yourself about that. And if we all do that then the stigma will naturally disappear, and - which is the reason why I'm willing to speak up and say it's all right to talk about it because it's another medical condition.
I've - by speaking, and I've spoken to quite a lot of people about what I went through I make myself very vulnerable in that situation and I have never had a negative response. And I spoke to my colleagues at work and before I was going to do that I had close family members going, "Are you crazy? You're going to ruin your career; you're going to limit yourself". And I haven't had any of that happen. The interesting thing is that the only people that have had a negative response to me speaking about this and about me staying on medication have been family members.
And I think and I want to and I don't know because I haven't asked, but I think it has partly to do with them wanting to move on and the emotional strain and the hurt that it caused them, it's just a natural human thing to want to move on. And when someone, as the way it's been described to me before, "Why are you reliving this all the time, why are staying in this, why are you mulling in this?" It's hard to understand that to me it's not mulling in it.
Every time I do speak to a group of mums or professionals and all I get is, you know, it's even about - it's obviously about education and making sure that people know what to look for, but the main thing that comes out of it is just this kind of, like, "All right, I'm allowed to talk about negative things", and just, "Thank you for just sharing this and opening yourself up because now I feel like I can do this in this situation with others". And it's really surprised me, it's really surprised me, just how little negative response I've had and it's really affirmed - reaffirm - sorry, actually strengthened my belief in humanity.
A few parents described modifying what they told to whom, and why. Factors they considered included how close the relationship was, whether or not they felt the other person was able to understand, or whether they thought they would be distressed by the disclosure.
Chelsea described how she was open about her experience of postnatal depression, but to varying degrees with different people.
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I have no problem with telling people that I was in hospital for postnatal depression and anxiety. I have no problem telling people that I'm - was taking - I'm taking medicine. I mean I don't go into the not nice bits like the vomiting all the time and the tingling in the arms, feeling suffocated, all that sort of stuff. I think that's better in a professional environment where they can explain to you why that's coming about. I don't think that's something that just - your partner or a friend, unless they've had experience with it or are trained in it, that they can really help you with.
But like I mentioned I made a very good friend, and she's actually - she got worse after hospital. And she's had a really rough time and when I look at her situation versus mine, she's amazing. I don't know how she's gotten through it. But we can say anything to each other. Like anything that we're thinking or feeling, we can say it, because we know that we've seen each other at our absolute worst and I guess you just - in that safe space. I mean, I'll probably tell my girlfriend more than what I would even tell my husband. Yeah, but I guess I haven't really needed to. When I was first out of the hospital, yeah, I - it was tough, but [sigh] yeah.
I'm definitely - I'm mindful of my audience, let's say. That's a diplomatic way of saying it. Yeah, and I just - depending on who I'm speaking to I tailor it accordingly.
Elizabeth described the different people she had disclosed her experience of postnatal depression to, and her reasons for doing so.
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There is still some sort of stigma attached for me, and I certainly wouldn't feel comfortable telling everyone that I see that I had had mental health issues. I'd be concerned that, that I would be viewed differently whereas I would have no concerns telling people that I had to have a Caesar, I had had some physical ailment. So there is still that stigma there.
I've disclosed it - certainly my mum's group are aware that I had postnatal depression. My family knows, but even that was very difficult telling my family, because I felt in some ways that I was letting them down or that I wasn't this, you know, perfect, wonderful child because I was, you know, having - having these problems and couldn't cope. And when you want so desperately for your family to be proud of you, you feel like this is something that's the opposite of that, it's something that they're not going to be proud of you about. So it was hard to tell my family.
And I have told other friends but more as an explanation for perhaps why I went off the radar for a couple of years and more a, "Please forgive me, I haven't been a very good friend over the past couple of years because this is what's been going on in my life", but it's difficult to share the very nitty gritty of it and how you felt and how you - I have one friend who's also experienced depression and it's much easier to talk with her because she understands how it feels and what it's like, so it's much easier to talk with her.
She's also had difficulty, you know, experienced some distress with her kids so she understands wanting to throw them out the window sometimes [laughs].
Melanie captured a view held by a few mothers when she said: 'I think we talk about the stigma of depression but I think it's actually the depressed people that create the stigma'. Deb found that once she disclosed her experience of postnatal depression, other people shared theirs which prompted her to suggest that: 'I think the more people talk about it, the less isolated you feel, even though I think often the isolation is self-imposed'.
Not all mothers who disclosed perinatal depression experienced positive responses. Some found people struggled to understand, particularly if they had not had children or experienced a mental health issue. Others felt people were uncomfortable upon being told about antenatal or postnatal depression. Maree explained the difficulty she had trying to tell her mother about experiencing antenatal depression: 'my mum and I don't have that kind of relationship and it was kind of like it fell on - not deaf ears but she kind of quickly changed the subject. She didn't really want to go into depth about it'.
Parents experiencing antenatal or postnatal depression mentioned a range of different sources of social support. Key among these were partners, mothers and friends, but mothers' groups, postnatal depression support groups, and online forums were also mentioned by several women. A number of parents said that their partners had been a critically important source of support. Michelle, a mother of one, described the role her husband played during 'episodes' of depression she had experienced, including postnatal depression: 'He sort of understands and then he tries to talk me down. He rationalises things for me I think. If my head's in a mess he'll sort of iron out the crinkles and just help me to see it in a rational light'.
Elly described her husband's support during early parenthood when breastfeeding problems, a slow recovery from foot surgery, and living in a new and unfamiliar area combined to make her 'sad' and 'anxious'.
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I needed to have a major foot operation and I couldn't carry or care for my baby for the three months after that. So my husband stayed home and cared for me and our baby and renovated our house.
That sort of feeding issue along with then having this major surgery, and being physically distanced from my son - so although we were obviously living in the same house, it was my husband who was changing his nappy, bathing him, doing all that primary care, because I was, essentially sitting or laying down for about three months and so I think that we sort of just became separated, and - yeah, that just made me sad.
Yeah, so he knew that things were pretty tough and he - a number of times threatened, if that's the right word, to call our GP because he knew that I wasn't coping very well. But I - in hindsight perhaps I wish he had but he never actually did it and I never had the - I always think, and I even still think now to a degree, 'Oh there's women lots worse off than me', you know, 'my problems aren't that bad'. I had a baby - you know, to be fair my baby slept wonderfully and once he was on formula he fed well, and he was really a pretty good baby overall. So I think, 'I don't - I shouldn't feel like that, I shouldn't feel so sad'.
But yeah, without him I would have really lost the plot. I mean, he did everything for me and for those three months and took us places that he knew that I wanted to be able to go when he'd gone back to work so we could practice where the trolley was, find all those things out and know where the - the baby change room was.
It seems so ridiculous that someone would be anxious about finding a baby change room. It's not like I've never found a bathroom by myself before but, yeah.
But it fades. I mean, time is a wonderful thing. Time is a wonderful healer if you have the right support I guess, I really believe that and I don't - I don't get anxious any more about finding a baby change room. I get anxious thinking about the fact that I was obviously but not - not about actually doing those things anymore - and practice and time but, yeah, it's funny how a little person can make you so ... yeah, so anxious.
For a few women, their own mothers or parents were also important social support. Zara's parents supported her including when she stayed with them several times during her first and second experiences of postnatal depression. Anna said after coming home from a mother and baby unit: 'I just had amazing support from my family, between my mum and my husband, during the day I didn't have a minute alone'. Chandrika, a migrant mother who experienced postnatal depression after her first child, described feeling optimistic and 'safe' about the impending arrival of her second baby because her mother had come from Sri Lanka to help her.
Georgia described how her mother and husband 'picked up' that she was struggling after her first baby and were there to support her, even though she did not talk to anyone about her feelings.
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And it was just, it was getting harder, and I didn't want my partner to go back to work. But obviously you know he had to go back to work. So I was really, really, really scared the day he went back to work. I was always calling him and stuff. And my mum came up and spent a lot of time with me when he was at work, certainly early on.
And you know, no-one sort of really picked anything up. But I think she realised that I was really struggling. I just didn't want to be at home by myself with a child. Or you know if she couldn't come over, we'd get ready, we'd get ready in the morning, and we'd go over there. We'd go and visit my parents just so I wouldn't have to be at home alone with this child, because I was just - it was just too overwhelming. It was too hard. I'd try and go out for a walk in the afternoon sort of thing, just to - when my mum would leave. She'd sort of leave at three o'clock in the afternoon to go home. So then I'd go out for a walk to try and get the little one to sleep, you know so I'd have a little bit of time, something - to do something.
Everybody outside of the household, I didn't disclose it. I was just saying, "You know, yeah, it's hard". But that was it, I wouldn't disclose any more. Husband at home, probably more that I just sort of, you know, if I didn't feel like doing something I just didn't do it. Like I was just, like I could only cover up. Like I could sort of put this persona on, when I went out of the house everything was okay. But when I was in the house and I'd shut the door, I could let the barrier down. And mum would come over. And so those that were sort of close [unclear], and really it was just probably mum and my husband that I would sort of really let the barrier down to.
Anyone else I didn't. Even my mother in law, I didn't. You know just anyone else came around, everything, everything was sort of fine. So ...
No one really knew, apart from mum - I don't know if my - I never really spoke about it with my mother - with my mother about it the first time. Whether she sort of picked up that I was. But she just saw I was struggling and she was just there to help. So did she pick up any more than that? I don't know. Did my husband pick up more than that the first time? [pause] I think he may have brought the subject up once, but I think I just said, "Nah, no, it's just hard, it's just hard". I didn't even - and he didn't sort of really bring it up much the first time again.
A few parents found support in fellow parents or friends who had similar experiences. Chelsea made a close friend with another mother she met in hospital for postnatal depression and commented that they could 'say anything to each other', while Maree found a 'little village of women' on-line who lived in a nearby city and who she would occasionally visit or receive 'packages' from. Tony, a father of two, found long-term friendships helpful: 'Friends that I've had I've had all my life, I find it easier to talk to them. Because they're not going to judge me. And they've had issues with depression and anxiety and things like that as well so it was good to talk to them about it'.
Michelle found attending a mothers' group for women who had experienced postnatal depression 'fantastic'.
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I go to a mother's group - well, I did a programme called Mothers Matter. And that's for a group specifically for postnatal depression - like people going through postnatal depression. So that - I found that really quite helpful. We still meet up a few times, maybe once a month or once every fortnight or whatever, just sort of catch up with each other. But yeah that was fantastic. We just got together every Monday. It was led by the psychologist that I see now. She runs the programme and like she's - specialises in postnatal depression and perinatal.
And she sort of sets out a topic each week and goes through it and it's really good for us to sort of get together and just talk about our experiences and sort of vent a little bit, get things off our chest and a lot of the girls in the group have kids that don't sleep. They've got sleeping problems, so some of them had had to go to [sleep school name]. And yeah just problems with their husbands and in-laws [laughs] and things like that as well. Like just get together and have a bit of a vent about that. Like not that I've had like a whole lot of problems with [my partner] but yeah in-laws probably.
Yeah and it's good to sort of - I mean it's good to have girls that are going through the same thing.
Experiencing antenatal or postnatal depression affected parents' relationships with partners, children, family members or friends in different ways. Often the impacts were challenging, especially before people realised they were experiencing perinatal depression, before they sought help or in the early stages of receiving assistance (see Identifying antenatal and postnatal depression and finding help). Many described experiencing increased tension with their partners, frustration with children, distancing themselves from friends, or withdrawing from everyone including their partner or children.
Fred described the impact of the depression he experienced after his second child's birth on the dynamics within his household - his partner, their pre-school aged daughter, and their baby son.
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I think the hardest thing in this whole process, post the birth of my son has been the relationship with our daughter, and that's from me and my wife. It's been very hard. My daughter was very excited about having a baby and she's a wonderful big sister. And I don't think there's too much jealousy involved there, but she's certainly struggling with it and she's bearing the brunt of our stress and anger. And it's simple things like her not listening will quickly turn into anger from us. And then because we get angry she gets upset, she starts crying, the baby starts crying. You know and then, and, and you just, you just put your head in your hands and just go, "Oh my God". Things can go so quickly wrong, and it usually happens when you've had a full-on day at work and you come home and there's an expectation because you're the new person at home that it's time for the person who's been at home all day with the kids to have a break, which is totally understandable, I'm sure I'd do the same. But when you've just had a gutful of it at work, and you have had a gutful it at home, it's just - it can be a bit much sometimes.
So yeah, I think that she's been copping it a little bit. She's also being a pain in the backside sometimes. She's four years old, I mean - and we kind of, we've acknowledged that we're sometimes thinking that she's an adult, we're expecting her to behave at a level where she's not at yet. So we've got, we've got to give her a break.
Last night I got home and my wife had to go out for a meeting. And so she ran out the door when I got in, and I had to cook dinner whilst my son was having a meltdown. So I was trying to bottle feed my son whilst cooking the dinner whilst my daughter was having a meltdown trying to climb up me, and I was so close to breaking down. But I didn't and I tried, you know I tried everything that I could not to do that and, and in the end it was okay. But it was close. It was really close and it was - it felt like it was going to be anger and then walking away. But it wouldn't, it wouldn't have helped the situation.
A few women described their partners becoming depressed or needing support themselves. Anna described how after she began to get better after two 'intense' experiences of postnatal depression, her husband: 'certainly went through his own period of grieving, of anger, of all those emotions that he couldn't allow himself to go through while I was unwell because he had to be the rock'.
Maree talked about the impact of her experience of antenatal depression on her relationship with her partner, and his relief when she was diagnosed.
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I think that - my partner finds it pretty hard to talk about feelings and stuff, I find, probably being one of three boys, and a farm boy at that, I don't think that he's really big on the - let's talk about feelings, sort of thing. So I think it was a bit hard on him, especially since he was working really hard and then coming home and finding me in a mess. And, you know, basically, you know - "You'd be better off without me, you don't need me, I'm such a bad housewife", and stuff.
I think also I found the big - like, the biggest thing as well is I think - I don't know - a lot of men are like this, but they connect on a more physical level. And when I'm depressed, that's like the least thing that I want to do. So I think that being pregnant, having a toddler and being depressed, it's probably priority down the bottom. And I think that's probably also impacted because he didn't - that's how he feels love from me. And so I was being sad, he was feeling unloved because I was in this little bubble thing and wasn't showing him any affection. And so he was feeling unloved. He was - didn't know what to do. He didn't know how to fix it and so he was at a loss. And I think that he was scared a lot because he didn't know what to do.
And at first he was trying - I think he might have had his blinkers on and trying to be like, 'Oh, you know, we'll just let her run her course because I don't know what to do'. And then when I got really bad, he was I think he started feeling unloved and I could feel that he was also kind of getting depressed, because he - he doesn't really have any friends in this area either. So if I wasn't connecting with him, he had basically no-one. And so he wasn't - he doesn't - wasn't sure what to do. He was feeling unloved and then so I think he was quite happy when I said, "Oh, you know, I think I need to ring my midwife and tell her that I'm - I have depression".
And I think he - he felt, 'Oh, thank God there's an answer for all of this'. And I think he was very happy that there was a plan - like we had a plan of action.
And so I think that once I said, "Oh, I think I've got depression", he was like, "Oh, thank goodness" [laughs]. "Phew!" Which is kind of a really weird reaction to depression. But I think that having an answer to, you know, not - like I think that he was like, 'Oh, and she doesn't love me anymore, it's me'. 'It's', - you know, 'She doesn't want to be with me anymore and things'. So I think that having an answer, he felt quite good about it. And but definitely scared when he was told he had to come in and - because he was like, 'Oh, they're going to try and blame me and it's going to be my fault if she doesn't get fixed or something'.
Some parents experiencing depression in the postnatal period found it important to keep in touch with friends, while others withdrew, began turning down social invitations, and became 'isolated'.
Cecilia talked about how it became hard for her to be around her friends after her daughter was born and during her depression following her relationship breakdown.
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Friends have been a really - what's the word, how do you pronounce that? Tumultuous sort of experience, like I wouldn't say that support from friends - not through them not offering it, but just in I guess through me - yeah, hasn't been a - it's been a big theme for me but it hasn't been something that's helped me at all.
I feel like - I think it's just completely tied to my sense of self-confidence, like around my friends, particularly as the only one with a child and them all being - still pursuing their careers and getting into, you know, awesome relationships or, you know, being happy in life.
The happier they were, the more shit I felt about myself, and so I actually really didn't want to be around my friends, so I probably spent a long time actually disengaging with my friends and - which didn't help, then, the sense of isolation and also the sense of reliance on my family, because my family was not only my sort of childcare support but they were my chief principle adult relationships to have relationships with, and that is not healthy because you need to have relationships with other adults as well.
But in the space of feeling like, okay, whenever I did socialise with my friends I actually felt more shit about myself, yeah, I really struggled with that for a good - yeah, for years, I'd say. Probably only started to shift recently, and I guess I can even say that even - even still sometimes I have, you know, and I imagine we all do to some different extent, but still experiences where I catch up with my friends and come away feeling a little bit like, 'Oh, I don't feel awesome about myself'.
You know, that's when you're doing all that you know, comparing yourself stuff and, 'God, how crap I am at this', or 'God, I don't know anything about this and they're so,' - you know, you're doing all that stuff. I guess now the difference is I'm, you know, more aware of, 'Okay, that's what I'm doing, it doesn't necessarily mean that they think I am, you know, this small and completely worthless - that's my own' - you're more - you read your personal development books, you know, you have conversations with your psychologist, as we all do, and you become more aware of these things. Yeah.
Several parents commented that the experience of perinatal depression strengthened their relationships. Some parents made new, 'richer' friendships as a result of perinatal depression, while others described growing closer to their partners or children.
Although in the early stages of experiencing postnatal depression
Deb thought the problem was her relationship with her husband, she said ultimately going through that experience made their marriage 'stronger'.
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So I feel really proud of this, that I guess our relationship is stronger now. I know that he's going to back me up. Not that he wouldn't back me up before, but we haven't experienced anything like this. He's been extremely supportive. Extremely supportive. His work has been supportive too, if he's had to take some time off. And - and I feel that without that support from him - you know how people get those little things on their shoulders, the little devil and the little angel? He's sort of like - sometimes I think, "God, I'm really stressed out", and then I think, you know, he said to me last night that he thought I was getting really stressed and I needed to take some time out. He's just really level-headed and able to provide me with a ground that I can understand more than if I was on my own. I don't think I could manage myself on my own.
Yeah, like he'll say things like, you know, he'll come home and he'll look round. He'll say, "Did you have a really bad day today?" It's like the keys are still in the door or the house just looks like a cyclone has been through it. And, it's like he just knows then that I would be fragile for the rest of the night, so without asking, he'll just do little things. Like, he'll take the kids for their bath, or try and make it a bit easier. And that's been, I guess, one of the best - the best things to come out of it, is that, you know, we know - I guess we know each other a bit better now.
And there's learning to be an individual as well. Like, we know each other and I guess since feeling a bit better from it, I've realised that I need my own interests and he needs his. We can't just be in our relationship with our kids and just be us in this house with the curtains shut. We need to have outside interests that are separate from each other, and that makes us all happier people.
He works on his car and he goes to car events and that's something that he does. Whereas [I have] uni. So, to have our own thing that we can then talk to each other about has been one of the biggest realisations of what we need in terms of how to run our family. So it's like you need to manage yourself as well.